Hi, my hubby was diagnosed with advanced prostate cancer 7 years ago, already spread extensively through the bone, including the spine. He did great for years, on two clinical trials. They're in the past, as is chemo. He's now on radium-223 and he is rapidly deteriorating. His quality of life has plummeted to rubbish, there's so little he is able to do. The pain is a constant battle, and the changes to both our lives are monumental.
I feel very bewildered at the thought of what is to come. District Nurses do the medical things, but how do I get him out of bed, dress and wash him, he is so much heavier than I am. He wants to die at home. I'm worried about the practicalities of me coping with this. When Mum and Dad had dementia, we had to pay for these type of care calls. Is it the same with cancer? I don't think I have the finances!
Someone said to me to apply for continuing health care, fast track, end of life. Google says the referral needs to be initiated by a clinician, but the hospital have never heard of it. Has anyone else come across this? I did apply for a similar thing for my parents, but was refused, along with almost everyone else.
I just wondered if anyone can shed any light on this?
