Hi
Not sure if this is the right place but please feel free to redirect me.
I have been diagnosed with metastasis from a primary tonsil cancer and lymph nodes and a lesion on the hip . The stage (?) is cT4 N1 M1 left tonsil P16 positive squamous cell carcinoma.
I have been told only palliative treatment is available.
I was offered;
1. a short radiotherapy treatment for the next region and then chemo to provide a, "Better quality of life."
2. A treatment of chemo as much as I can take, presently 4 sessions, to try and control the spread then if it seems to be helping a more radical treatment of the neck.
No preference was suggested by the consultant the choice was left to me. The consultant was unable to provide evidence which was a better route. Neither was he prepared to offer figures for life expectancy beyond no treatment was probably 1 year.
I wondered if any one was able to comment on the ,"palliative only'" and the choices suggested by the consultant? Also the choice I made.
I chose No 2 as I felt trying to arrest the spread was the most important but what do I know, nothing. The first chemo is this coming Friday 20th August.
This has all come about since the beginning of June and my partner and I are unable to stop crying and I feel I am watching some hazy bad film and then waking up and realising this is me.
Your thoughts would be very welcome.
Thank you
Geraint
