Metastic spinal compression

FormerMember
FormerMember
  • 2 replies
  • 14 subscribers
  • 1413 views

Hi, my mum was diagnosed with kidney cancer 12 months ago, the cancer was removed but was also told she had a small cancer spot on her lower left hand lung, this has been monitored with 3 monthly scans until her last scan in July where it had grown to just over 1cm, she was then reffered for a Pet-scan, which was when they discovered that she had the metastic bone compression, she had surgery to remove the tumor on Tuesday and due to coronavirus i can only visit every other day as my dad and i take turns, information is lacking and she has had no contact from her cancer care nurse. Im looking for advice on how to find out what's going to happen next and how i can support mum and dad, mum's outlook is very low and i need to tell her something positive. Thank you. 

  • Hi and welcome to the online community

    I'm very sorry to read that your mum has kidney cancer which has spread to her lungs and bones and it's natural that you want to know what happens next.

    This can be very difficult for anyone in the group to answer as we're not medically trained and everyone's treatment is tailored to their medical needs. The best people for her to ask would be her consultant or CNS. You said that your mum hasn't had any contact from her nurse and I wondered if this was after she'd left a message asking the nurse to contact her? If the nurse isn't returning your mum's calls then she could contact the Patient Advice and Liaison service (PAL’s) as they can liaise with your mum’s treatment team.

    When you have a minute, it would be really useful if you could pop something about your mum's journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    x

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Just talk about normal things with her. Don’t set a big agenda for chats. Your ‘being there’ is mostly all she needs. 

    Stay strong

    Alastair