Bladder cancer but in my kidney and ureter

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I was diagnosed with cancer in my kidney and ureter, had a radical neprecureteromy, histology is back at tumor was grade 2 utuc which is apparently very aggressive, I have been offered chemotherapy to decrease the chance of it returning! They believe at the moment they have removed all the cancer which is positive. I’ve looked at the information about the cancer and it shows a much reduced chance of recurrence in 5 years. 

  • Hello  and welcome to the group although sorry to hear what you have been through. lots of experiences here regarding BC and so always someone with an answer to any questions or you can just come for a chat to get things off your chest. I have had my fair share of chemo and tolerated it quite well with not too many problems. I hope all goes well for you. Best wishes.

    Best wishes to All,   rily.

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  • Hello clairelilyrosie,

    sorry to hear your diagnosis, I was diagnosed with locally advanced UTUC back in Dec 2022. I was given neoadjuvent chemo where the cancer shrank enough to allow surgery, I then had a nephroureterectomy where final diagnosis was grade 3 T2 of the renal pelvis. I have recently had my latest annual CT scan, along with my six monthly cystoscopy and I continue to remain cancer free three years later. Wishing you well on your journey and I would definitely take any treatment offered.

  • Thank you so much for your reply, that’s so good to hear, thankfully mine was stage 2 and went straight to surgery, I will be taking the chemo as my kids although grown are still very young adults 18 and 19, I just want to crack on now so I can carry on with my life and get back to work, hopefully yours clear scans will continue x