This is just a hello. I am RobS living in Bucks. Was diagnosed with bladder cancer on June 19th (G3 but had not yet invaded muscle). Had TURBT and Redo TURBT. About to start BCG. Any thoughts and Thank you All.
Hi Rob and welcome to the forum. There are a few of us on here in the BCG Club, all with varying diagnosis and length of treatment. I have recorded mine in my profile, if you click on my name it documents my BCG time and reactions so far. I am due to have number 22 in January 2027 !! It is not an easy road but I have found doable. some on here have found the reactions much tougher and have had further discussions with their teams as to what alternatives they can take. I am 3 and half years since my 1st turbt in 2023 and no recurrences of my high grade tumour. Stick with the group, they are lovely people who have steadied me through the lot. I love them all for always being there.Take care
Much love Angela x
Hi RobS. I was diagnosed with NMIBC last April. First TURBT was incomplete because my bladder got perforated. Second TURBT went well. I have now completed 6 BCG sessions. I haven’t had any physical reaction from BCG worth mentioning but it’s not the same for everyone. The first four were a walkover. After 5 I felt more tired than normal. After 6, well that’s where I am now, 3 weeks past and I haven’t yet recovered from my tiredness. My brain isn’t tired. I want to do things but I just don’t have any energy. I am hoping the tiredness will lift soon but I feel fortunate that I don’t have any bladder discomfort. Lots of water is the way to go. Flush out the bladder.
Kenzie
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