New Bladder cancer patient

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Here I am to say hi. I have been diagnosed with hi grade tumor and will begin BCG treatments. I may enter a trial of Anktiva plus BCG in BCG naive patients. That combo usually reserved for those who have failed BCG therapy only. I just wonder if anyone has experience with the combination. In any case, pretty nervous about the whole thing. Any reassurance on BCG therapy would be much appreciated. Thank You

  • Welcome to the group. I didn't have BCG, but plenty here who have had it/going through a course, so I'm sure they will soon be along to comment. Seems that some sail through with relatively mild side effects, others have much more severe issues. Hope you do well.

  • Good Morning  and welcome to this friendly and supportive group. Not had BCG myself but many here have and I am sure will be along to share experiences. Regarding anktiva, I've not come across it here in the group and a search brings nothing up, so it sounds like a new treatment alongside BCG. Keep us posted on how it goes. Best wishes.

    Best wishes to All,   rily.

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  • Thank you for the reply. I am from the US, so maybe that is why

  • Hi MrPib,Welcome to the group.Best wishes for your treatment.Jane 

  • Also, I am a fitness/ masters swimmer. Asking for advice on working out in gereral and specifically swimming. Day 4 after TURBT/gemcitabine and despite the fatigue, I am going to try with a small goal of 20 min. 

  • Hi  . It is advised not to do too much for a couple of weeks following  a TURBT as there is the danger of aggravating the wound. Slow and steady is the way, but great to hear you like to exercise. Best wishes.

    Best wishes to All,   rily.

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  • Hope you are well

    Anktiva is approved in the UK via the NHS for BCG unresponsive patients. BCG still being the best option

    Best regards

  • Same in the US. My urologist is one of many throughout the US doing a study of Anktiva in addition to BCG in patients who have never been treated. 

    ImmunityBio Advances First-Line BCG Naive NMIBC Program with Enrollment Exceeding Expectations and Positive Interim Analysis for ANKTIVA® Plus BCG

  • Press release from January 

  • Bit different in UK , it is only approved for people who have failed bcg therapy. Even then it is given with BCG ! Your FDA has recently reprimanded the manufacturer for overplaying it's effectiveness and there a number of class actions being raised by investors over this. Interesting to contrast the two counties approach, time will tell.

    Best regards