The journey has begun..

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Morning all,

I had my meeting to discuss the histology from a TURBT at the end of May. The diagnosis wasn't what we were hoping for and I have (had) a 1cm TaG3 tumour. As it was coplicated by the fact it was in a bladder diverticulum they weren't able to suggest the treatment pathways, although radical cystectomy, diverticulectomy and BCG therapy were all mentioned. I have a meeting at a specialist hospital next Tuesday and I'm currently trying to avoid Dr Google.

Things are all moving so quickly.. I went to the doctor with what I thought was likely a UTI / kidney stone in the middle of April and I'm now booked in for an appointment to discuss removing my bladder in less than a week.

Luckily I have the best partner I could ever hope for so I am counting my blessings.

Feelings at the moment are veering between anger at the unfairness of it all, denial (they have made a mistake / everything will be ok etc) and complete numbness.

  • Thanks Teasswill,

    It's good to know that the offer of RC is actually NICE guidelines rather than something specific to my situation, and it's even more positive to hear that was 15 years ago for you. Hopefully after hearing all the pros and cons next week the best decision will become clear. At the moment none of the choices on offer seem good!

  • Yes, I had that sense of choosing between two unpleasant options. Spent many sleepless nights mulling it over.  Thinking about your personal priorities, circumstances etc will help. Sometimes it's easier when there isn't a choice, but only one currently recommended course of action.