Just been diagnosed with high grade muscle invasive bladder cancer and a bit scared of the future. Not sure if I can have treatment as one of my kidneys has been badly affected by the tumour. Just hoping I can have radiotherapy. In limbo at the moment as waiting to hear about that but it’s taking awhile and the waiting is not always easy. Trying to stay positive as don’t feel ill.
Hello dake and welcome to this friendly and supportive group. The days of uncertainty and not knowing are always anxious times. Once a plan is in place, it gives you something positive to focus on. Hopefully you will see an oncologist soon to find out which way you are going. Best wishes.
Hi Dake!
I think we all agree the waiting is the worst bit! I was going out of my mind as I had to have 2 turbts before I got a proper diagnosis. They weren't sure if I had a T1 or a T2 high grade cancer so I felt like I had to start the waiting all over again when I had to have the second investigation turbt.
When I finally got an answer and they decided what treatment route they were going to try I felt a lot better!
I felt really alone when I was waiting for diagnosis etc but then I found this lovely lot on this forum and all their words of wisdom and support really helps.
What ever treatment options the medical team helps you through there's daily support here too! We're all travelling different paths but there's more than likely some of us who are on a similar one!
Wishing you the best of luck for whatever they decide and sending my love!
Keep us all posted with good or bad news, there's always lots of us here for you!
Kitty xxx
