Hello everyone,
Firstly, I’d like to thank everyone for all the useful information, commentary and support on here. I’ve just started reading it but there’s a real camaraderie that shines through.
I’m not sure I should be posting here quite yet, as I’m still waiting for my diagnosis. After recurrent issues with my bladder not emptying properly stretching back a good few years, I got in touch with the doctor again recently as it seemed to be getting bad again - what seemed like lots of UTIs and pain. They sent me for an ultrasound and I was lucky enough to get in on Monday, and the results were sent back urgently as there’s apparently a 1.2cm lesion in my bladder.
I also had some blood tests on Tuesday and they’ve come back with borderline high red blood cell, white blood cell and leukocyte readings, as well as what seems to be non-diabetic hyperglycaemia. I don’t really understand what all that means, but I’ve got to go back for more bloods in a couple of weeks.
I've been given a referral to the urology department at Derby Royal Hospital and an appointment for a week on Friday, but no detail as to what this will entail yet. It was fairly scary seeing the words ‘urgent’ and ‘cancer’ on my notes on the NHS app and wasn’t something I was expecting to see. I’m guessing the lesion will have to be checked out to see if it is malignant or not. The referral also mentions ‘suspected renal cancer’, but no one has spoken about this to me yet - just the bladder lesion.
Anyway, on the one hand I’m really pleased that everything is moving, and on the other hand a bit in the dark as to what it means. Obviously I’ve done the whole thing of going down internet rabbit holes, which is what led me here, and it seems that benign lesions in the bladder are quite unusual, but I’m still hopeful that it might prove to be so, and also feeling positive that something is being done to address the problems. I’m in a fair bit of pain and discomfort around my groin, abdomen and back, which is what really encouraged me to go back to the doctor after a good few years of investigations leading nowhere. I’m hopeful that, whatever the outcome, that can be addressed so I can get a decent night’s sleep again ;)
I know it’s hard to make a prognosis without any of the investigative data, but I’d be interested to know the experiences of others and what I might expect from my referral, and also if anyone has had a benign lesion that’s been treated.
Thank you all again for such wonderful wisdom, insight and openness in these forums. It’s been really helpful to read and to see the positivity shining through from so many people. I wish you all the best in your individual journeys 
-matt
Hi Matt,
Sorry to read that you are struggling. We all do during our BC journeys ️ 
After I had both my TURBTs I left the ward with an information pack of numbers to call if I was unwell after the surgery and a number for the Urology CNS. Didn't you get anything like that? If not you could always give the Consultant's Secretary a call to ask her for those contact numbers. If you are unhappy with your treatment or if you feel you have "fallen through the gap" you could always speak to PALS at your Hospital, I'm sure that they would be able to help.
In the meantime, you need to be kind to yourself and try to take things easy. Your bladder will still be healing so try to not do anything too strenuous.
Love to you and your children, Ade xx
