TB Vaccine treatment.

Hi Auntyaggie,

I found the actual process not too bad. Afterwards my biggest issue was the urgency to go to wee. But this goes after a day.

He will need to try to keep the BCG in the bladder for a couple of hours, so I was told to stop drinking anything a few hours before the process is about to start. 

Having the catheter inserted isn't too bad, bit of a shock the first couple of times, but it's in and out after a few minutes. After a while you know what to expect. I wouldn't say you get used to it, but I can tolerate it alot better now and no longer causes any concerns.

I've stayed in the hospital for the whole process, but I understand that some people do leave straight after it being inserted.

My nurses ask me to stay in bed and rotate every 15 mins. So start on my back, then side, front and so on. I understand that not everyone is asked to do this.

Most times I have managed to last the 2 hours.

BCG is a live vaccine, so after the two hours he will have to wee sitting down to avoid splashing and will have to bleach the toilet and leave for 15 mins before flushing.

I really hope your husband's treatments go well.

Kindest Regards 

Sorry I should have mentioned that he will need to bleach the loo after each wee for 6 hours.

If you have two toliets in your house it's recommended he only uses one loo for the 6 hours.

Thanks so much BFG. That is helpful information and also reassuring. 
It has been a bit of a rollercoaster ride so far but fingers crossed for this bit.

Hope everything is going ok for you too.

Thanks again BFG. We have two toilets.

Hi Auntyaggie, my husband had 6 BCG treatments then a TURBT to check all ok and then a further 3 maintenance BCG’s, I have read on here that some people have more than that but that must be the protocol for our hospital (N&N Norwich)

It really wasn’t as bad as we thought it would be, it’s not the best thing to go through but a lot of things aren’t and this hopefully will have a good impact on the cancer.

He is now having 3 monthly flexible cysstoscopy’s and so far so good.

Hope all goes well for you. Jean.

Aww thank you Ma Baker. 
It is the fear of the unknown isn’t it.

It does help, just having real life experiences from others though.

I wish your husband all the best too.

Hi Auntyaggie,Welcome to this friendly group.I hope you will find it helpful.Best wishes for your husband’s treatment.Jane 

Thanks, the problem when we start this journey is that we actually know nothing, I found it helpful to ask questions on here for things that I didn’t understand, cystoscopy, TURBT immunotherapy, etc, I had no idea, it was the help of the kind and knowledgeable people on here that helped me and I’m sure it will help you also. Jean x

Yes. Thank you so much. I currently have two close family members just about to begin cancer treatment. I also was treated for skin cancer earlier in the year.

It has been a tough year so far and will continue to be for at least 6 months yet until we know results. 
Then our daughter is due to get married.

Thanks so much for your friendly welcome. x