Hello all,
I have been a silent follower on this forum since May and have read all of your challenges, heart break and success stories.
My Dad (72) was diagnosed in May with bladder cancer after finding blood in his urine. I’m not sure what grade or stage exactly but I know that after two TURBT ops he was given the option of bladder removal which he had done on the 10th. After removing the bladder, a rotten kidney, prostate and uretha, we think this may have cleared him of anything sinister. Awaiting results but hope to find out more in the next few weeks.
Anyway, since his op he has really struggled to get moving, was in lots of pain and probably didn’t get up as much as the doctors/nurses would’ve liked. However this seems to have had a huge effect on the bowels eg not knowing when he needs to go and getting cut short. He has had no issues with the new stoma and everything else seems ok.
Has anyone had anything similar after bladder removal?
would love to hear your views.
best wishes to all who are going through this dreadful disease.
sarah x
Hello Pinkmunkee and let me welcome you to the group although sorry to hear your Dad is having a tough time with his recovery. Not had this myself but have been here long enough to know it takes some people longer than others to recover. I am sure others with experience will be along to offer some help and advice. I hope all goes well. Best wishes.
Hi Pinkmunkee,Welcome to the group.It’s common to have bowel issues following cystectomy.Some people get diarrhoea but constipation can cause problems too.Hopefully over time things will settle down but it’s hard to say how long it might take as we all vary.I had paralytic Ileus post op where the bowel stops working and it took 6 months for the bowel to get back to a more regular pattern.I was on a low fibre diet to begin with but gradually introduced more fibrous foods.It’s usual to not have much of an appetite at the start of the recovery.Eating little but often is best.At the start I was shuffling around the house and up the road to the postbox and back.Walking distance can be built up gradually but your dad should try and move each day.There is plenty of support and advice here so I hope you will find being here helpful.Love Jane x
Hi Pinkmunkee
My father in law had his bladder and prostate removed in September and is having similar bowel issues-in fact he has a gp appointment today-although I think he should be seeing his consultant. He is 78.
Usually, bowel issues seem to go the other way, with constipation being a bigger issue. I had my bladder removed several years ago, but also had my colon removed so I didn’t suffer from this, but my father in law is having no warning, and diarrhoea to the extent he needs to wear incontinence pants now every day. He has no issues with the stoma at all, but this other problem is causing a lot of distress.
My concern is dehydration, as he is not drinking enough and losing a lot. As soon as he eats it goes right through him as soon as he stands up. It seems to me that things should have settled more, nearly 3 months after surgery, but I’d be interested to hear how your dad gets on.
Sarah xx
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