Neo b ladder, due to cancer in bladder

Hello SGH23 and welcome to the group. Sorry to hear you now have prostate cancer on top of what you have been through so far. Not had this op myself, but others here have and should be along to help. I hope the spine situation turns out to be nothing to worry about. Best wishes.

Thank you for your reply, I will update  after I get scan results. Btw, I had a PET/CT last week. I suppose they will look at both scans to get a clearer picture /diagnosis. Thanks

Hi SGH23 

I’ve had my bladder removed and have a urostomy. My father in law, who is 78 had his bladder and prostate removed in September this year as he had 2 separate primary cancers-bladder and prostate. He now has a urostomy.

You mentioned neobladder in your post title, and ileostomy in your post so I’m not quite sure what you’re having done? The neobladder is not the same as a urostomy, but there are people in the group who have had a neobladder formed rather than a urostomy. I wasn’t sure if you’ve already had your bladder removed and have the neobladder?

I was confused by the mention of ileostomy however as this is for the collection of poo when you have some of your colon removed.

Sarah xx

Hello, an illostomy is for urine, colostomy is for bowel, I suspect you knew that. A neobladder is when the bladder is removed and another one is made from a piece of the colon. So it acts as a low pressure bladder 

What has happened is that a couple of weeks ago, I had a TURP(trans urethral resection of prostate) due to a urine blockage. It was a biopsy from that proceedure once analysed showed a n aggressive sarconamoid cancer. The best option I have is for it all to be removed, including urethral tubes. The next scan is of my spine, so I'm keeping fingers crossed. Thank you 

Hi there

An ileostomy is definitely not for urine.. it’s for poo. I have a permanent colostomy and a urostomy, so I do understand what each means, and I also know what a neobladder is. If you believe an ileostomy is for urine, I’m afraid you are mistaken.I’ve lived with stomas for the best part of 4years, so I really do understand what each one is and how they are formed and work.

Sarah xx

Hi SGH23,Welcome to the group.I’m sorry to hear you have prostate cancer as well.Best wishes for your scans and treatment moving forward.Jane 

Hi Sgh23, I had sarc bladder cancer T1 and prostate cancer T2  and had both removed and a neobladder fashioned. That was going on 6 years ago and all is very good . If you have questions please ask.

I believe the ileostomy is the resection of a portion of the ileum , usually about 25 cm for the purpose of creating the neobladder.

An ileostomy is where a portion of the small intestine is brought out through a hole made in the abdomen to collect poo outside the body, whereas the neobladder is made from the small intestine but the neobladder remains inside the body where the bladder was to collect urine. 

An ileostomy has a completely different function to a neobladder, though they are both made from the small intestine (ileum).

Sarah xx