Hi everyone
my name is SUZANNE
I HAVE TRIED BUT CANT CHANGE MY NAME FROM SMGH
I have an upcoming operation on the 8th June for a RC
I am having a MITROFANOFF at THE ROYAL MARSDON HOSPITAL in Chelsea London Dr Kumar is my surgeon
because they completely change you’re sex life if the woman has a hysterectomy I asked if they could not do it
they gave me an MRI and the surgeons at the MDT meeting said I wouldn’t have to have the hysterectomy which means it saves the vagina
Dreading this operation I will be peeing through my belly button by catheter for ever.
self catheterisation just dreading it ♀️
Hi Suzanne. Not had RC myself, but just welcoming you to the group. I am sure someone with experience of this will be along to offer some help. I hope it goes well. Best wishes.
Hi, Royal Marsden is an excellent centre, you will be in good hands. Certainly RC is a massive operation, but bodies are amazingly strong & adaptable. I have neobladder & have to self cath - seems odd at first, but i'm sure you will soon get used to it. Good news that they don't need to do a hysterectomy, so you won't have early menopause (unless already passed). A good surgeon will preserve as much of the vagina as possible anyway, so all is not lost. Try to look on the operation as something positive to remove the cancer & ensure that you have a healthy life ahead.
You will be immensely tired & weak at first, recovery can seem very slow & frustrating, but you will get there. Just go slow, at the pace your body dictates - build up walking, eat little & often & drink plenty. Many of us here have had RC & now getting on with our lives. Very best wishes for 8 June.
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