Hi, I am new to the group having been diagnosed in mid November with bladder cancer. It is in a diverticulum attached to my bladder which gives it an extra twist, however the overall prognosis is that everything needs to come out - bladder, prostate, lymph nodes, and seminal vesicles. Despite the obvious shock I am positive mentally as just need to do what needs to be done, as at 54 I am not prepared to give up. However one of the big decisions I face is the options for how to urinate in the future. There are fundamentally two choices - urostomy bag or neo bladder. Both have pro’s and con’s from the research I have done. I will have to be partly guided by my surgical team but do have a say ultimately and am interested in talking to people who have been through the operation, discussing which way they went and how they feel about their choice now. Sorry for the long blurb but as we all know on here I am sure - so many questions !!
Thank you to anyone prepared to share their feelings on the subject. I really hope and intend once I am through this to somehow help others on the journey, when they need it.
