Hi everyone
I wish there was a meet-up group or coffee meetings but none being held in my area of Putney London
min August I was diagnosed with bladder cancer
the biopsy came back High grade aggressive cancer
non muscle invasive ( so a positive there )
THEN
They called me back for another TURBT 7 weeks after the first one.
They found TEN TUMOURS had returned in that seven weeks and took another biopsy
I’m due for a face to face with them on the 3rd of November to discuss the latest biopsies and treatment
I’m of course dreading it thank goodness my son is travelling to London to be with me for the meeting.
in the meantime I’m having a Gastaoscopy tomorrow as they think a para esophocal hernia has returned ♀️
also next Tuesday I’ve got to have a Cystoscopy the day before my face to face with my cancer team.
it just seems to have come all at once
im 64
im so exhausted guys and wish I had people in my position to FaceTime or talk to
I know there is this group and I know there’s McMillan people by phone in the day.
hope McMillan’s coffee time or groups return soon.
im sending love and wishing you well.
SUZANNE
Hi Suzanne. I t sounds as though you have a lot going on all at once. I hope all goes well with your cystoscopy. Good timing going in to your face to face, and good to know you will have someone with you at the meeting. Do you have a Maggie's Centre near you ? Never used them myself, but many here have given good reports on the face to face and group support. Best wishes.
Hi Suzanne.
Sorry I'm late to respond. I'm not on here so much now I'm back at work full time. So sorry to hear youre having a tough time, there are virtual support groups running. Maybe you can see if there is one of those in your area.
Sending love to all
Clare
There is a Maggie's Centre attached to Charing X Hospital if that is any help?
KidneyBeen
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