Confused

FormerMember
FormerMember
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Hi all,

I've just joined but I'm not really sure if I should be here. I'm having a Turbt Monday but I don't even know if my tumour is cancerous. Little confused as to why I'm having it and then having biopsy after. So many questions I feel overwhelmed. Any advice greatfully received. 

Thanks,

  • Hi and welcome to the group. Early days for you and we understand how the not not knowing and uncertainty can cause a lot of anxiety. It seems as though they have identified some abnormal cells in your bladder. I assume you may have had a flexible cystoscopy to find this. The TURBT is a fairly routine procedure and you may be out the same day, but prepare for an overnight. The offending cells will be removed and sent off for analysis. The result of the biopsy will determine if cancer or not. There will be a worrying couple of weeks waiting for results. Be aware that if it is cancer, then bladder cancer can be treated successfully in most cases. Ask any questions, no matter how trivial they may seem. Lots of people here who have been there to answer. Best wishes.

    Best wishes to All,   rily.

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    1. Good evening Mooms and welcome to the group. So you’re having a TURBT on Monday and Riley has explained why that is happening. The anticipation is more stressful than the procedure and the object is to find out what’s happening. The results of the biopsy will tell the medics what they have found and a plan will be drawn up to treat whatever it is . Most on here have gone through the procedure so if you have any questions or anxieties this is the place to ask about them, somebody will have an answer. If it’s cancer then remember it’s treatable cos Riley said so, best wishes J 
  • Hi Mooms, I am in the same position as you are, but my TURBT is not until 9th August. The TURBT is to remove the tumour cells. The biopsy later is of the muscle wall to see if the cancer has spread.

    Ask stuff here, also try to connect with your local Macmillan nurse.

  • FormerMember
    FormerMember in reply to Coojee

    Hi Coojee. Have u been told you have cancer? I haven't. I had the camera and then next thing I'm referred for op within a week but nurse said she'd eat her hat if it was in muscle lining. I don't want to have chemo if the tumour isn't cancerous. I'm confused.

    Hope your op goes well.

    :-) 

  • FormerMember
    FormerMember in reply to WallyB

    Thank you

  • FormerMember
    FormerMember in reply to rily

    Thank you for the reply. I don't understand why they would remove, give chemo and then do biopsy. Why not biopsy first and if not cancer then leave it be?

    I'm not keen on having chemo when I'm not sure if I have cancer. 

    My op has been booked in just over a week after camera. Is this normal timescale as this worried me being so quick. Thanks for your help. 

  • They said it was cancer. But it's not been tested yet for stage. The chemo is not injected, they just fill your bladder to pick up any cancer cells left behind.

  • The biopsy is of your bladder muscles whuch were under the tumour.

  • Until the biopsy has been analysed the medics won’t know if cancer is evident. A programme of procedures will be drawn up to consider further action if necessary. My own biopsy identified cancer and I had BCG which is immunotherapy , chemotherapy is different but I have no experience of that. The BCG cleared up any remaining tissue and I was clear last month. I now have 3 monthly checks by cystoscopy. The waiting for results can be frustrating but the outcome can be favourable. Regards, J.

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Mooms,

    When I was first diagnosed I had my TURBT pretty quickly so I wouldn’t read anything untoward in the speed of process. You will have any tumour and cells removed as rily said and as a precaution they may put mitomycin ( chemo) into your bladder to catch any rough cells. It is painless, usually inserted through the catheter you will have and it’s left there for an hour or so, no after effects.

    Once you get the results of the biopsy you may need further treatment but sometimes it will only be regular check ups, it depends on the stage and grade.

    Hope it all goes well.

    Luce