Turbt recovery and strenuous excercise

FormerMember
FormerMember
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Hello! 

I‘m 38 years old and 3 weeks ago had a turbt to remove a T1 tumour. After the operation I asked the surgeon how long it would be before I could ride my bike again and was told I should wait 4 weeks. 

It’s now 3 weeks since the Turbt and I have been having intermittent blood/scabs/clots in my urging for a few days + some soreness at the end of urination. I’ve done some research on the Macmillan forums and I think this is fairly normal part of the healing process in that my bladder is healing by letting the wound scabs fall away? 

I’m a bit all over the place emotionally at the moment and have focussed on getting my bike ready to be able to go on a gentle ride next week (4 weeks after surgery as advised by the surgeon). I’m wondering if anyone has experience of getting back on a bike or back to strenuous activity and if there are any warning signs I should be looking out for that would indicate I should stop riding. 

I also keep on finding myself close to tears or having a wee sob but I don’t know why. I keep telling myself to stop being such a wimp and that there are other people who’ve had much worse experiences. Can anyone relate to this?

Thanks in advance Blush

  • Hello and a warm welcome to the group. What you describe is fairly normal and as you say, the clots are part of the healing process. It is important to keep taking plenty of water to flush things out. Also important not to do anything too strenuous in the first few weeks as you know, but some people take longer to heal than others. In general, it takes about 6 weeks for the wound to heal and important not to aggravate it during this time. As long as you are showing blood, I would say it would be unwise to do any serious riding. As regards the emotional side of things, I would say many of us would be familiar with this. I had a few meltdowns in the early days. It is the uncertainty and not knowing. Once you get your biopsy results and a treatment plan, things tend to get better as you know something positive is happening. Many of us have been there and still here to tell the tale. Best wishes.

    Best wishes to All,   rily.

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  • Hi,Welcome from me too.I would agree with what rily has written and wait a bit longer before riding your bike.It’s rare but it is possible to suffer a bladder haemorrhage some weeks after a TURBT.I had one exactly 4 weeks after the procedure and ended up in casualty.Sorry you are feeling tearful,it’s all a bit overwhelming at first so it’s natural for emotions to be all over the place.We are all here to help and support you.It’s a friendly group.Best wishes Jane 

  • FormerMember
    FormerMember in reply to rily

    Thanks very much for taking the time to get back to me. What you’re saying makes sense but is a bit of a blow. I guess on the plus side it gives me more time to fix up my bike 

  • Hi welcome to the forum.. I ride an electric bike and thoroughly enjoy it Sunglasses I didn't ride mine for 6or 7 weeks after turbt I was afraid of doing myself a mischief but I am 65 so quite a bit older than you .. You'll soon be back on your bike but don't rush things or it willtake longer in the long run ..good luck for the future take care Slight smileBest wishes Tina 

  • Hi. I had my turbt 6 weeks ago tomorrow and I have not had any bleeding since the procedure but I am still getting some pain on the days when I have done too much. 

    I am also very emotional at the moment and it hits me at the most ridiculous moments. Ha ha. The other day I started to get tearful walking round the supermarket.... 

    Continue to rest, your body will let you know when it's time to get back out there. (I say this like I have all the answers and I do not.....I am still coming to terms with it all).

    Be kind to yourself.

    Hope you get your results soon 

    Sending love 

    Clare

  • I think general anaesthetic can make you a bit emotional too. I always used to get a dip about 10 days post op. Doesn't matter if others are having a worse time than you, sometimes you need to cosset yourself to gather the resources to cope with your situation. Good wishes.

  • Hi teaswill 

    Ha ha....... funny you should say that! I keep telling myself I can't ask for help or reach out because there are others in a much worse situation than me.

    It's good to hear and to remember that its your own feelings that matter we all have different coping mechanisms and different levels of stress. It's OK to not be ok sometimes. Slight smile

    Sending love 

    Clare 

  • FormerMember
    FormerMember in reply to Hou

    Hi, 

    Sorry it’s taken so long to respond. Thanks so much for your advice. In the end I waited 5 weeks before going on a very casual road ride and then a more full on mtb ride just after 6 weeks. It felt greatto be back on my bike although sourcing parts in the pandemic/ post brexit world is proving difficult. If you ever need any bike maintenance advice let me know Blush

  • Hi mountainbikeislife

    Good to hear you are feeling better and recovering.

    We've had some lovely weather recently (well, we have I my part of the country) must be good for the soul being able to get back out on your bike again.

    Sending love 

    Clare