Diagnosed yesterday age 33!

Hi Lolly. I’m sorry to hear that. I don’t have experience personally (my husband has recently been diagnosed) but I wanted to reply to you this evening. One of the lovely people on here will be along soon. They will be able to advise and guide you through this. X 

Hi and welcome LollyS. Whether like my husband you get off with repeat TURBTs and BCG and Mitomycin [chemo into bladder] or whether it is more drastic, you certainly will find reassurance and people's stories on here to match whatever happens with you. Have you also looked at the MacMillan info sections, they posted out their booklets on bc for us several years ago which was great. Generally keeping as healthy as you can and plenty of sleep [children permitting of course] will help you deal with the ride even if it may be like a roller coaster at times, ie control what you can in a helpful way.

Best wishes, Denby

Hi and welcome to the community, although sorry to hear you have been diagnosed with BC. Firstly let me tell you that bladder cancer can be treated successfully and many here can tell the tale. In a way it is good it has been found as many people get palmed off because of their age. Once an older persons disease, we are seeing more younger people these days. My own BC was very advanced and I am still here over 7 years later. I only say that to give you a little reassurance. We know your head will be in a spin at the moment and the early days of not knowing and uncertainty can be very stressful. The op you are due to have is called a TURBT (trans urethral resection of bladder tumour). sounds worse than it is. Usually done in day surgery but prepare for possible overnight. Biopsies will  confirm if it is cancer and a treatment plan will be put in place. Treatment is defined by the results which will take a few weeks. waiting is never easy. Early days for you yet, but feel free to ask any questions. There will always be someone here with answers. Best wishes.

Such a shock when you are told this we always imagine this is something that happens to others not us ..I was told on December 14th ..I had pre assessment following week and turbt operation on Februay 1st to find out stage and grade I was in overnight the procedure was OK bit painful after but nothing much ..I had my results 2weeks later i have CIS ..I've read a lot on this site about it and hadreassurance from many .. try not to dwell too much on this it can take over your life and make you so unhappy and ill.. I know its hard and it's overwhelming but once you have your diagnosis you willhave a plan put in place for the future ..I start bcg treatment on Wednesday..the waiting is really the worse part of this I think we just want the days to pass by quickly and get something done to sort everything out ..take care and try to go out with the children for walks ..this covid is making everything so much worse for everything  xx thinking of you  love Tina 

Hi, I forgot to mention, invest in a bottle or several of Robinson's Lemon Barley Water [not the "fruit'n' " stuff] [first recommended by my old GP]. Whenever you have had a TURBT or cystoscopy, dilute the drink properly and drink plenty. It helps discourage any germs from causing urinary tract infections which are a common pest after procedures. Best, Denby

Hi

Sorry to hear of your recent diagnosis.  

I was diagnosed with Stage 1 Grade 3 (T1G3) cancer in June last year.

Our journeys through this are all unique but  have a lot in common.  Experiences from people in this group have helped me a lot over the past 9 months.

I can only echo many of the things other members have said already :-

• the first part where tests are being performed and waiting for results is naturally a very anxious time
• try not to worry (easier said than done)
• bladder cancer can be treated successfully

After my first flexi in Jun-2020 where it was confirmed there were tumors in my bladder, a series of CT Scans, MRI Scans and the TURBT procedure were arranged.  For me this was the most worrying time - mainly because there are so many unknowns and it is then natural to think of a range of potential scenarios.

The first TURBT removed the tumors and provided the biopsy results.  It took about 2 weeks to get the results from the biopsy.  When the biopsy results confirmed the stage/grade a 2nd TURBT was arranged (about 4 weeks after the 1st TURBT).  The 2nd TURBT confirmed everything had been removed.  Both of these involved an overnight stay in hospital.

My treatment plan was then discussed and agreed on.  I opted to take part in a trial so the plan was to have the standard 6 x BCG installations and then every 4 weeks an infusion of a drug called Durvalamab. For me things got much easier when the treatment was confirmed, the unknowns were all answered, the plan was in place and I felt re-assured.

I completed the BCG installations in Nov-2020 and am happy to say that since completing the BCG installations I've had 2 further Flexis which both showed no signs of any tumors.

I know in the grand scheme of things it is still early on in my journey to say it is all over and done with, but each 3 months now I have a flexi and have the re-assurance that I am being well monitored.  

Best Wishes.

Thank you x

Thank you x

Thank you! Great to hear you're doing well xx

Welcome from me too.This is a nice friendly supportive group and I hope you find it helpful.There is always someone around to answer any questions you may have.The waiting around for tests and results is probably the worst time.Best wishes Jane xx