Bladder Cancer

  • 28 replies
  • 51 subscribers
  • 2056 views

Hi, I’m just looking for someone out there who has had a (bag) - a Stoma I think it’s called fitted - to see how they find it? Is it all ‘that’ bad? Thankyou in advance Pray 

  • Actually one more thing that I would like to ask people on here (on my father’s behalf) is - He’s wondering whether to go Private or not? - I know that the NHS usually get straight on with treatment for cancer - but apparently there is a huge backlog at the moment & cancer patients are having to wait? We are in the West Yorkshire area 

  • I can't fault the treatment I got from NHS in rural North Devon. Despite being through the Covid crisis and lock-downs I only experienced minor delays. Remember that bladder cancer requires long term care/treatment whichever route your dad chooses. There have to be screenings and MRI's over a long period of time, particularly if he chooses to keep his bladder. I anticipate going for annual screenings for the rest of my life. Hope there is someone from West Yorkshire in the group who will log in and advise. xxx

  • My husband had a fast track referral from Gp to hospital, query bladder cancer? this time last year, since then he has had scans cystoscopy’s TURBT’s and 12 BCG treatments etc, I think if you went private it may be quicker but we are very happy with the NHS treatment, plus the care has been very good so we have no complaints. We live in Norfolk and the hospital is The Norfolk & Norwich, it may be different in other trusts but that’s our experience.

  • Hello Ellie.M

    I have been receiving treatment for BC for the last five years. Initially at the wonderful Rosemere Cancer Centre (NHS) then Preston Royal Hospital and Chorley and South Ribble Hospital. Looking back I was fortunate to receive free parking for my Radiotherapy and Chemotherapy treatment. Those days are long gone now! Even through the dark days of the pandemic I received regular treatment and wonderful care from the NHS. For the past five years I have had cystoscopies, MRI scans, chemotherapy, radiotherapy regular flexible cystoscopies etc all through the NHS and with no delays worth mentioning. I hope your dad gets similar treatment. Good luck to you both. Garviv

    Garviv

  • Hi Ellie,

    I have had a Urostomy Stoma since 2014 - it is just a part of my life now- the preferred option to a woodern box! I have always found Salts Medilink to be very friendly and helpful with supplies and specualist Stoma Nurses available for advice.Best wishes

  • Hi Ellie

    After 18 months of BCG I ended up needing a cystectomy.

    I had my surgery 3 months ago and am managing my stoma really well.

    I am amazed at how quickly and easily I have adapted to my new lifestyle.

    Best Wishes

    Kiko

    Kiko