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Newly diagnosed and Age ranges

Lili39
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  • 47 subscribers
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Hi everyone. 
thank you for everyone on here who posts. It’s so informative to read. I am 39 years old and have recently been diagnosed with bladder cancer. No one seems to know why I have it at this age. At every appointment everyone tells me how young I am which at first was a nice ego boost but now seems to be raising  questions in my mind. I recently had a TURBT and have my follow up histology/consultant appointment next week.
I wanted to know if there was anyone around my age range who has this. Perhaps we could chat? I Love chatting to people from any age group but I am interested to see if there are many other people in their 30s or 40s with this type of cancer? 
Is there anyone who was first diagnosed this at a younger age? I am worried I will have a lifetime of reoccurrences? Is my life expectancy shorter now? 
My husband and I have just cancelled our trip to New York for my 40th next year and we can no longer buy the house we had offered on as I am not mortgageable now. So feeling a bit low. However, I know that I am lucky to have good healthcare and for this to have been caught early, hopefully. Any advice would be gratefully appreciated now. Thanks Blush 

  • Hi Lili39, i was 34 soon to be 35 was I was told I have cancer, if you want to chat let me know. Have you had your results yet? X

  • My husband was diagnosed at 35 so know how much of a shock it is. He had the same everyone saying how young he is. He has had one reoccurence so far in his first year of treatment. Think it is a bit of a bumpy ride initially but hoping it will get easier soon. Xx

  • in reply to Sparkle6

    Hi Sparkle. Thank you for the reply. Sorry your husband was diagnosed. May I ask when he was diagnosed. I’ve heard it’s quite common to get a recurrence early on like you said. X

  • in reply to rily

    Thank you. This was very helpful advice. 

  • in reply to xbargee

    Thank you for your reply. It was really helpful. Especially about not waiting for the storm to pass. As that was all I was thinking. When this is over I will…..  but I need to do the now. Thank you x

  • in reply to Lili39

    Hi Lili39, just to say, you could easily be well enough to have a New York holiday for your 40th next year. I went to Sri Lanka, visiting national parks and the seaside for 3 weeks in 2019 during a 3 month gap between my BCG doses. I was 72 then. I agree with Rily, definitely speak to the Macmillan team ref mortgages before you give up your housing dreams. I would expect you to have many healthy years ahead of you and you have to live somewhere. By now I think you will have had your biopsy results and some advice from your urology team? Hope their news was encouraging and you have now met your designated cancer specialist nurse? best wishes H x

  • in reply to Lili39

    He was diagnosed just under a year ago. He had a turbt again a couple of months ago and is having heated chemotherapy at the moment. Have you had any results yet, do you lnow your initial treatment plan? The recurrence statistics all depend on the grading of the tumours, but there are so many treatment options and your treatment team will keep you informed at each stage. Xx

  • in reply to Sparkle6

    Would you mind if I msgd you directly pls x

  • in reply to Lili39

    So glad that "The storm to pass" was helpful - it seems such a sensible and positive attitude to adopt that I am never afraid to "preach" it !

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