BCG treatment

This sounds very standard. . I had 6 BCGs, which were to have been followed  by a flexible cystoscopy and  then 3 maintenance BCGs. But then the flexible was delayed by Covid, and when I did have the flexible, the cancer was found to have got a little bit worse. So I then had  6 more BCGs at weekly intervals. This was followed by a another flexible which revealed no sign of cancer at all. Next came 3 maintenance BCGs., which were  again followed by a flexible, which once more revealed that the cancer had vanished. Nevertheless I am to have  3 more BCGs.

This routine is likely to continue, because bladder cancer has a habit of coming back. 

As for how it affected me, I have been very lucky, in that few of the suggested side effects have upset me. But I do get very  fatigued. And I do have trouble with UTIs; To deal with UTIs I have had to lay off tea, coffee and all alcohol, and just drink the local water, (which is very good.)

We are all different, so I just suggest to you that you should go ahead with your BCGs. The specialist cancer nurses who administer them are very good company.

.

lots of good info already given To be positive Mr W has had 24 bcg treatments over 5 years and has been cancer free since his first.course He progressed from 3 to 6 to 12 monthly checks 

love

Wilbert xx

H Julie

yes I was in the same situation 4 years ago and have had 18 BCG treatments last one January

i had a camera in March which was clear but my camera today showed a new tumour which hasn’t quite completed a format “ I was told today”

so I won’t get my bcg next month and in 4-6 weeks I’ll go for my 7th turb.  Some feelings of disappointment as I had two operation last year I was looking forward to a longer break♀️

still I’m well and able so gratitude is high for me 

I wish you well any take each treatment as it comes the most annoying g for me is the bleaching for 6 hours after using the loo!!

much love 

Gizie cat x

Yes fully agree I suffered more duh g the loo every 39 mins couldn’t hold longer until a few months after treatments.

your right I’m a re occurrence so it was a bonus a clear camera, in my head I hope I’m clear yet tbh the only time I think of the cancer is when I go to the hospital 

I decided when I first was diagnosed it would not run my life other than hospital appointment.

much love

x 

I follow same philosophy Giziecat. I also push cancer to the back of my mind until the next hospital trip. The reoccurrences are dispiriting but how wonderful it is when you get an all clear!  I just feel incredibly grateful that thanks to NHS I've had a relatively healthy life since diagnosis in 2017. Still smiling since my rigid cystoscopy with GA on Monday when the doctor could find no evidence of disease. Now booked in during July for my final 3 doses of BCG (25 -27) Good luck to you Giziecat and Julie1812. x

I wish you luck on your last stretch of treatments next month! 
I popped to see the oncologist nurse to tell her I won’t be back next month as I’ve another reoccurrence and each time she looks upset bless her.

I developed the dismissive attitude as I realised it protects others around me from the worry and concern.

Also in the beginning I believed after the first 6 doses of chemo it would be gone and that was that.  It wasn’t till the first couple of returns and I felt so out of control knowing it was disrupting my life and I couldn’t stop it I changed my mind set.

I agree it is dispiriting when you see it on the camera however in some way I feel in control again to the degree it’s been caught out and it will be removed.  We were chatting yesterday at the hospital and the nurse said we are family and in it together and that made me smile.

We are survivors and I’m grateful for being so lucky, I’m the main childcare for my daughter doing the school runs having the 20 month old who is very active I always tell the nurse I’m too busy in life to be a victim to this un invited visitor

keep high spirits and good health thank you for your  response have a wonderful day my friend.

Gizie cat x

Thanks for your lovely message Giziecat xxx

Wonderful to read your positive posts I have my rigid in 2weeks so hoping for a good result but not going to waste time being miserable and worrying myself sick over it ...when I was diagnosed I prayed for me to be able to deal with things and not have that horrible anxiety all the time thankfully I am dealing with it so much better ..I suppose nothing has really changed only my attitude I hope i can keep this my way of thinking not be a miserable old bugger lol xx as Lena Martell sung one day at a time .. keep posting gang lovely to hear from you all x keep smiling

Hi Hou 

well at some points we all deserve to be a mis mog then it gets it out our system

We are all on different journeys however the end result is the same live our lives to the full, dance the dance of life and smile so everyone ends up like me a face full of wrinkles as my granddaughter tells me.

yes agree one at a time live your now as tomorrow is a gift and it hasn’t been opened yet 

Have a smiling day to you all and  I wish you many blessings 

much love 

x

I can’t help but recall the old song. “No matter how young a prune may be , it’s always full of wrinkles, Folk they get them on their face, prunes they get them every place “