Just a heads-up from the nurse this am. Giving last of top-up chemo series she says that different suppliers' batches can react differently on different patients. Suggesting this as a reason for greater irritation/pain after chemo [Mitomycin] this series that before, being a new German batch due to supply from previous source stopping.
The irritation for me is that last week she admitted that this series is because someone failed to do proper paperwork for the administration of a single dose as a 'washout' last flexi. So this saga has cost the NHS FOUR precious doses instead of one, and us four complete extra lots of travel and wrecked weeks. I am grateful really for the treatment just wrung out with the effects on us both. His mental health is really suffering with the frustration of not being able to get anything done and the humiliation/shame of increasing incontinence. Determined to ask GP at tomorrow's appt booked for a different issue, for incontinence service referral. The GP appt will be the third for the ever-larger inflamed patch on his leg which he's had for about 3 months, various creams to no effect. Today the chemo nurses bless them inspected it and reckon it's undiagnosed cellulitis which is/can be serious and will certainly not be cured by any creams.
Sorry for rant, just know you lovely folk understand where I am atm when he can't even cope with my being chatty with a friend who rang up a short while ago.
Just praying our traumas are unrepresentative and that you're all getting on better.
Denby
Hi Denby. Sorry to hear Mr. D is still having a tough time of it and I know these things have a knock on effect with loved ones. The MMC situation can't be helping. I hope your GP can offer some relief. Just wishing things get better soon for you both. Best wishes.
