An Introduction...

Hi nick freckle,

Sending you my best wishes for tomorrow.

not surprised you’re s******g a brick at the moment. Been there, done that, burned the tee shirt.

once you’re through the door, you’ll have your answers, and you’ll know the path to take. It comes as a great relief to all

Just wanted to send you all the best for tomorrow, I personally think you’ve handled all this very well, well that’s how you’ve come across anyhow, if it was me I would be climbing the ceiling with anxiety, I don’t handle it very well. 

Let us know how you get on and like has been said once you get a treatment plan you’ll feel a whole lot better, x

Hi all, thanks for the lovely comments.

Well, I have grade 3 invasive and advanced. G3pT3a.

I will be having a course of chemo, then radiotherapy - he's going to do all he can to try and save my bladder due to my age - I hold the dubious record of being the youngest bladder cancer patient he has ever seen. 

I'm under no illusions that this is pretty bad news.

The long road starts here...

Hi . Could have been better news, but do not despair. Same diagnosis as me, and it sounds like you are going down the road I followed. I got through it okay without any real problems. I was 63 when I started and have recently passed my 68th, and a regular at the gym (and pub). Any questions, do not hesitate to ask. Best wishes.

Certainly not what you wanted to hear but at least things will move quickly by the sounds of it. Good luck you will beat the bugger.

So sorry Nickfreckle not the best news but from reading your posts I think you’ll cope with it. You also have Rily who I’m sure will be a great comfort to you. Keep posting and sending hugs to you x

Hi Nickfreckle,

I'm new to this group and have just caught up on your thread.  Just wanted to say I too had symptoms for about a year, stingy wee, slightly pink on occasions.  I got told by Dr that I was not in a high risk category, it wouldn't be cancer....  I'm 41, slight build, non smoker!  

Well, after tests found out I had multiple tumours in my bladder (4).  I've had 2 x TURBT and I'm having BCG treatment.  

So sorry to hear that yours have gone deeper than mine, keep going, its a long journey, hang in there.

So sorry the news wasnt better but there are people on here with the same as you they will help you all the way keep in touch with everyone it really does help good luck xxx

Sorry to hear that wasn't the news you would have hoped for. At least you have a path to follow now. best wishes for the grueling time ahead, hope the treatment works well.

Hi, not popped in for a few days, so thought I'd blog a little update. Have started to get pain in  my pubic area for the past 3 or 4 days now, along with pain in my hip. I've given my CNS a call, and within the hour she called back with an appointment for a bone scan, so will be having that on Tuesday morning.

I also have the first appointment with the oncologist on Monday, at the rather random time of 1700. 

I've lost 5 kg in weight in the past 7 days, despite trying to have an appetite and eat properly, and I'm also starting to become pretty fatigued. I was going to attempt to return to work Thursday coming, but I really do not feel up to it - so that's been put of for at least another two weeks. 

When I've been going to the toilet, I've been noticing my wee has started to get darker, and today there were real signs of blood again - dark brown. Again, this was mentioned to my CNS and all she said was she'll pass that on to the Urologist. 

It's now been a month since my TURBT, and I started to feel ok again, my wee was a lovely, normal colour, but what with the bone pain, urinating blood again, as well as new pains now in my actual bladder, I'm starting to accept that quite possibly I've been dealt with a bit of a poor hand. 

Whatever will be will be - but for the first time since this all started, I feel different within myself. I feel ill, for want of a better word. I can't explain it, and cannot exactly put in to words how I'm feeling - but what I do know and can say, is that I don't feel 'right'.