My husband (age 65) blood trace urine Jan CT scan Feb then TURBT April 19 - consultant phone conversation 8 weeks later confirmed 5cm tumour surface ie non muscle invasive. TA G2. No treatment discussed (had though she might suggest BCG) and we had been told pre op they would do a ‘wash’ at end of TURBT but when we asked during June call if this was done she referred to notes and said no. Don’t know if this is relevant but I will get it out there that he arrived at 7am but was last in day to be operated on - late afternoon and was in for 2 nights. Catheter issues for next 6 weeks but that’s another story. We were told that he would have a cystoscopy under general in mid July. Passed all pre ops late June, no date for op. We chased by email then again on Mon this week and they rang straight back (guessing a cancellation) said could do this Friday ie today. So he came round from op -late afternoon it took 1.5 hours and in recovery area the surgeon told him regrowth and removed tumours. He hardly took it in as was drowsy and I wasn’t with him as had to sit in another waiting area and when I finally got to speak to someone was told he would be staying in and he was moved to a ward. He told me about the tumour regrowth - I really feel the surgeon should not have spoken to him alone and in a state of drowsiness. I spoke to senior nurse (as you may imagine quite upset though kept this from my husband) and asked for the surgeon to visit both of us to give a little more of an explanation. In a nutshell He said there was a lot to remove and as he hadn’t done the TURBT had read notes and was surprised to see this. I said about short notice getting op date and he said lucky we got that as had it been left any longer… so I feel thank goodness we chased So, we had a pre arranged consultant date of Aug 31 - the surgeon said the histology will determine what next. We knew recurrence is not uncommon but we’re shocked at the speed Can anyone offer words of wisdom, experience? Feeling shocked at home alone digesting and know my lovely husband will be feeling same in hospital bed. Thank you Caro
Hi Veritas12 . Sorry to hear your husband has had a recurrence. It is not unusual for us to chase up appointments. Appointments for procedures etc. are usually arranged by admin rather than the doctors and you can never read anything in to the timings, sometimes there are cancellations and they fit people in at short notice. Mitomycin is a chemo treatment and administered in the same way as BCG. When the results are in you will then know the way forward. Best wishes.
