1st post from me. My son aged 45 has muscle invasive bladder cancer, he's had a turbt and has chosen to have chemo and radiotherapy rather than surgery. 3rd chemo session is tomorrow, then I assume a ct scan to make sure radiotherapy still an option. I've been following this page since his diagnosis. I would love to hear from any of you that went down the same route as my son. Thank you all for reading x
Hi Son turbt and welcome to the group although sorry to hear your son has to go through this at such a young age. I had this treatment for muscle invasive bc ten years ago. Six weeks of chemo (Gem/Cis) followed by six weeks of daily radiotherapy with chemo (chemoradiotherapy). After chemo there will be several weeks gap to let things settle down then further scans. My post chemo scans showed the growth had been halted but still there. I was fortunate not to have any noticeable side effects except tiredness, mainly owing to the daily round trips. After treatment finished I had several weeks of erratic bowels which is common with pelvic radiotherapy. Also bouts of fatigue, but this all gradually passed. I had a recent blip and have to go back for further investigation, but I have had nearly ten years clear with normal functioning bladder. Happy to try and answer any questions. Best wishes.
Thank you rily, I was hoping you'd see my post! I noticed from previous posts that you'd opted for the chemo/radiotherapy route, and your reply makes me more positive. Most of the other lovely people seem to have had bladder removal. There is still always the chance that my son may have his bladder removed, but he is really against this at present. I know this forum will be of great help and support to me. Thank you x
Hi Son turbt. Although my OH's bc was found before being muscle invasive I just want to add to the welcome to the group. Sorry to say of the city teaching hospital that's treated him, the treatment has been Ok but the hospital info has not been a patch on this group. Hope your son's is better.
Denby
So far the main problems have been with admin. No communication, no letters/emails /phone calls were received for a couple of appointments my son has missed only because he was never told about them! Very frustrating. He's with Mid Yorkshire Trust hospitals at present, but if he has radiotherapy, that's at St. JAMES, Leeds. Thank you.
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