Hello, just joined and wanted to say Hello!!
I had my appointment for my first flexible cystoscopy confirmed today on the 2 week referral scheme. It’s been a whirlwind few days from being contacted by my GP for a routine urine test, which I thought looked perfectly clear, to being told it had microscopic blood in it, to now having a cystoscopy.
Having trawled through the internet this afternoon and feel a bit daunted now by all the various possibilities. So many questions really, but my first is ‘ When I have my flexible cystoscopy, will I be told straight away if they have found anything and what happens next’?’
I look forward to reading posts from other members of the group about their experiences and any advice or tips anyone can give.
cheers
Good afternoon MontyGR and welcome to the group. I’m not an expert, just a fellow traveller. My experience of flexi cystoscopy is that you’ll see what’s found on the screens next to you. Just like your analysis of your urine sample you Won’t be aware of the of the nature of any findings. Then you wait to find out the next procedure . Best keep of the internet and read what folks on here have to say, best wishes, John.
Hello MontyGR and welcome to the group. We know how daunting the early days of uncertainty and not knowing can be. Good to know you have been referred early to find out what is going on. A flexible cystoscopy is a camera in to the bladder and you will be able to see for yourself on the screen. Anything abnormal will be pointed out to you but cancer would not be confirmed until a later date when biopsies will be taken if anything unusual is seen. The procedure is usually painless although a little uncomfortable going in. Takes about ten minutes. Best wishes.
Hi MontyGR and welcome, must depend on the urologist, I didn't look at the screens even when the nurse invited me to, unfortunately the urologist was quick to inform me whilst still laid on table that I had a tumour, the annoying part he was he was quick to suggest cancer and blame the fact I was an ex smoker (packed in 8 yrs) If they should find anything they will send you for a TURBT which they will take a biopsy and send to lab, another appointment will be made a few week later for results. I wouldn't worry to much at this stage as there can be many other reasons to have microscopic blood, a flexible cystoscopy being the first port of call and the majority as I was told by my GP are negative for tumours, wishing you best of luck with the procedure.
Hi MontyGR,Welcome to the group.You may be told that an area looks red or abnormal but you don’t get more details until biopsies are taken and results are back.If anything abnormal shows up with a flexible cystoscopy you will be called back to have another under anaesthetic.Although it is possible to take superficial biopsies with a local anaesthetic it’s not often done and it’s painful.It is much easier for the dr’s to inflate the bladder and take deeper biopsies under anaesthetic.The flexible cystoscopy is a quick procedure,it only takes a few minutes and you should be able to watch on the screen if you want.I hope it all goes well.Best wishes Jane
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