Blood in urine no infection - cystoscopy

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I went to the out of hours 3 weeks ago with pain in my left side and lower back. Urine test showed blood so was given antibiotics. Two days later I was admitted to same day emergency care blood in urine again I had a bladder scan and Kidney scan. No stones. But water retention so they fitted a catheter. And send home with antibiotics. I’ve still got blood in my urine but no infection. They’ve refitted the catheter and are sending me for a cystoscopy end of december that’s the first emergency and also urodynamics. should I be worried blood and no infection. I’m worried if it’s c word that it will get worse 

  • Good morning and welcome to the group. It is understandable that you are worried about blood in your urine. As you know, blood is a symptom of bc but can be caused by several other things. Water retention is a less common symptom but in any case, should be investigated. A cystoscopy is the best way to detect bc and the end of December seems a long wait. The guidelines say you should be seen within 2 weeks, although we know there is a bit of a backlog following Covid. It may be worth talking to your GP to see if they can refer you sooner. Nothing seen on a scan is good news as scans cannot pick up early stage. Just be aware that if it does turn out to be bc, then it can be treated successfully. Best wishes.

    Best wishes to All,   rily.

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  • Hi Knebworth,Welcome to this friendly group.Blood in the urine should always be investigated to find out the cause.It is good that you are having some tests.Urodynamics will show how well your bladder is emptying and retaining urine.I hope you find this forum helpful.There is plenty of advice and support here so do ask questions if needed.Best wishes Jane 

  • Thanks do you mean good news as ultrasound picks it up early? What if it is precancerous? Would i still have blood in my urine then? I’ve read that ultrasound isn’t reliable and cystosxooy is the best for early detection. 

  • Hi would blood be present in very early stage but missed on ultrasound? Also I’ve read flat like tumours can be missed?

  • Hi . Ultrasounds and CT scans find it difficult to pick anything up that is just sitting on the bladder lining, so although clear scans it doesn't mean there is nothing there. A visible inspection via a flexible cystoscopy should be the next step. Best wishes.

    Best wishes to All,   rily.

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  • Hi,As rily has mentioned the cystoscopy is really the best way to see exactly what is going on in the bladder.For many years before getting cancer I had a chronic bladder disease.Cystoscopy showed up inflammation and pre cancerous changes.Cystoscopy is a quick procedure it only takes a few minutes with a flexible scope.You can get blood in infection and inflammation as well as cancer.I had ultrasound to see how thick the bladder wall was and also to see if I was retaining urine.

  • How did they remove your changes? I’ve got no infection or stones or anything so that’s why I’m worried

  • The pre cancerous changes were monitored firstly with regular cystoscopies and urine cytology tests to check for cancer cells then just cystoscopies.That went on for 14 years until I developed bladder cancer.Any red patches were removed using diathermy (cauterisation with heat) and biopsied under general anaesthetic.I had Interstitial Cystitis for 34 years.

  • Do you have supportive family and friends ? Most people find they feel better able to cope once they know what is wrong.We have all experienced the uncertainty and worry waiting for tests and results.We are all here to help you.