To summarise my case: end of June 2021 diagnosis of BC. 9th July 2021 TURBT. Removed 2 tumors, one 3cm. and a second 3mm. Both turned out G3T1a. Done 15 BCG treatments. Last ended mid Sept this year. Today first cystoscopy after 1 year of BCG. The bladder in slightly inflamed. Which apparently, despite being annoying , is a good sign...as that's what the BCG is meant to do: trigger an immune reaction. But aside from the inflammation there is no reoccurrence! I have been lucky! My consultant said that the BCG has done what it was meant to do... so yes: BCG works!
Next cystoscopy will be in 3 months time. Under GA as the consultant wants to take some biopsies. To be sure...
HI! BCG *and* chemo? 9 weeks? Did you say you have G3T1? I would have thought that for G3 the BCG (the preferred treatment if the stage is less than or equal to 1) is for 3 years starting with 6 once a week (induction), then 3 every 3 months for the first year then 3 evey 4 or 6 months the 2nd and 3rd year... obviously, if this is what your doctors have said, they know better than me....! But it would be interesting to know. Anyway, if the cancer has not gone into the deeper layers of the bladder, you should really be confident it can be cured! And in many cases even if it has gone deeper (see Rily's case!). I think that once the treatment has been agreed and has started you will feel a lot better.
Do let us know!
Well it's for 9 weeks initially at Guys once a week, 2 weeks bcg then 2 week mitomycin and so on then they will do GA to check ifs it back or still there. Not sure what the plan is there after. Just need to get through the first lot first and hope I can tolerate it. Thanks for your good wishes.
I was told initially it would be 6 weeks at first at local hospital but Guys do it differently and with Emda for the mitomycin.
Ok, now I see. Well, as we know it is a question of statistics.... but I think also of "school": some doctors prefer to be 100% sure and go for bladder removal (RC) others are more for preserving the bladder if at all possible (hence BCG/mitomycin etc.). Both solutions, as I understand it, have pros and cons. None is certainly better. My understanding is that as long as BCG works (no reoccurrence within1 year, no progression, no appearance of CIS etc.) you are safe to carry on with immunotherapy/chemo. Of course, should these fail then you will have to reevaluate the situation. This is what I understood. I have read a lot of articles... some times doctors ask you to make a decision but don't really give you all the information to make it. It is tricky, as some details around trials with immunotherapy or RC are really hard to understand... and statistics is really hard to translate in English... but what I understood from what I read is that as long as you are tested frequently and as long as the treatment works you are safe to carry on without RC....
Good luck!
Thank you so much Mpb1963, let's pray and hope I am a good statistic
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