Hi all , had my results yesterday, not what I was hoping for so my tumour was a T1mid-high grade , I now have to have another TURBT and when that is settled down I am starting on BCG treatment. I’m finding it a bit overwhelming atm but any advice you guys can give me will be much appreciated. Advice mainly on the actual treatment , did anyone have really bad side effects? Did anyone persevere for the whole 3 years? If so how are you all doing now . Thanks for reading this and I hope it’s not insensitive to ask best wishes Nelbell
Hi,
I was diagnosed with Carcinoma in Situ in April 2019, starting my BCG treatment in May 2019. I have never smoked or worked in the chemical industry, so the only likely cause was being male. I had 6 initial treatments followed by another 3 treatments every 6 months for the full 3 year program, a total of 24 treatments. My treatments would take place at 13:00 on a Wednesday, I would then be driven home to lie on the sofa for the remainder of the 2 hour timeframe. There were only a couple of occasions when i was unable to hold the treatment in for the 2 full hours. To manage the pain I used codeine and ibruprofen, and drank plenty of water.. In order to help pass the expected blood clots, I found that drinking water whilst sat on the toilet, and the gulping process it created, helped pass the clots a bit easier. It definitely wasn't pain free, but was manageable.I continued to work throughout my treatment, often starting to work again on the Thursday morning. I am also a keen runner and cyclist, and was able to continue my exercise by the weekend. I hope your treatment is successful, and best wishes for the future.
Ian
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 89 Albert Embankment, London SE1 7UQ. VAT no: 668265007