Recently Diagnosed

FormerMember
FormerMember
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Hi All 

Hope everyone is keeping positive

I have been diagnosed with bile duct cancer last week I was told four weeks before when the found the tumour that they could operate .

After being send for a radiation scan this has now come back and shows three spots which they say indicates a spread but could be scar tissue from sepsis that I have had twice along the journey.

Did anyone get sepsis along the way.I would also like to ask what ages are the group im a healthy 51 and been a vegetarian for 25 years.

Thanks 

Graeme

  • Hi and a very warm welcome to the online community

    I didn't have the same type of cancer as you but I noticed that you hadn't had any responses to your post yet.

    If you type 'sepsis' into the group search bar you'll find quite a lot of previous posts which mention this. You could have a read through some of them and respond to any of the more recent ones if you wanted to ask the poster any further questions.

    While you're waiting for replies it would be great if you could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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  • Hello Graeme 

    let us hope for a firming up on the scar tissue theory and that you are in line for surgery.  At 51 you are young and fit.

     As to sepsis, my husband got it twice and was hospitalised both times and through that his bile duct cancer was diagnosed. He had a bypass stent fitted and almost instantly was able to eat and felt fine.  My husband is in his mid 70s and was quite fit for his age.  Strong legs - as he had been quite a cyclist in his time and a strong heart though a lifetime meat eater and whisky drinker.

    when spread was found via his contrast CT scan I made quite a fuss about how it was read as that spread is the difference between cure and palliative care.  Cure being the whipple surgery. His case notes went to a consortium of specialists to make the decision as it is so significant to survival outcomes. 

    surgery is the prize in this kind of cancer.  

    As you sound very fit I am sure your gastro team are being very thorough.

    wishing you well.

    janeyc

  • Hi Grame, don’t forget to ask about radiation treatment. Depends on size and location, but can be good alternative the chemo

  • Hi Graeme, I was diagnosed in January, started on chemo in February (Gemcitabine and Cisplatin) which I'm on until July. Too far metastasised for surgery or radiotherapy but responding well to chemo and without too many side effects either.

    I'm 67, vegan/veggie for 35 years, and until this in very good health. Incidentally, I haven't experienced any nausea while on chemo, which I wonder if that's due to, or helped by, my dairy-free diet? I have developed blood clots but this was spotted early and I'm now injecting anti-clotting blood thinner every day which should deal with it.

    I do hope you find a treatment that works for you. Stay positive if you can.

    Best wishes,

    Kay