Hi Everyone,
I've just joined this group as a close family member has been diagnosed recently with Bile Duct Cancer. I have always been an avid supported of Macmillan and have recently completed their 5k 10 day challenge.
The diagnosis initially was delayed as it was believed to be gallstones and cancer was ruled out. A ERCP procedure was carried out and it was believed that a stent had been fitted (bearing in mind this is all going on during COVID and so no one could go into the hospital other than the patient until the discharge).
It then turned out a stent had not been fitted and there was a miscommunication regarding this. A week later they were back in for another ERCP which also failed but they also didn't come home on this occasion. It was at this point it was realised that there was a tumour in the bile duct. It was suggested that the tumour at was only stage one but further tests would be required to find out what type of tumour it was and to ensure it definitely hadn't spread anywhere else.
A further procedure was completed and the stent was successfully fitted. They were then sent home to recover for 6 weeks until a consultation could be had with a specialist. Two weeks later they were rushed back to hospital after two days of temperature spikes and pain in the side. This is when we were told they now had bilary sepsis. They are still in hospital now being treated for this.
I am finding it incredibly hard to get information, purely because we are in the midst of a pandemic, and we cannot go into the hospital ourselves to get the information we need, which I completely understand. I don't think the hospital are allowed to give information over the phone either and the patient is too ill to update us. I just wondered if anyone else had been through this and knew if this was all normal (not that anything seems to be normal now a days!)
Any support or advice would be much appreciated. Thank you in advance.
