hi everyone. I’ve just joined looking for some help and advise.
My dad was diagnosed with bile duct cancer Nov 3019 with mets to lungs.
Following having a stent fitted it’s his lungs that give him the most trouble. He’s had to have 5 plurel effusions and his consultant decided to fit a permanent drain.
Unfortunately this has stopped working, he’s only had it 3 weeks. We went to the hospital today and the dr explained that the fluid was in one large cavity so was easy to drain BUT now the lining has formed lots of little pockets and therefore they can’t really drain it now - they only managed to get 200ml out (normally 1.75ml)
he said that dad is not well enough for the operation to glue his lining shut as its major surgery so in his opinion they should take the drain out and there’s little more they can do.
Hes made us an appointment with his consultant for next Monday.
Autely they can’t just leave him can they? He can’t breath, he struggles for breathe just sitting. He can’t eat as he can’t breathe while he chews, sleeping is difficult as well.
Hes on low dose morphine to try and help but I’m wondering if anyone knows of anything else that we can try to help him? Anything I need to be asking the consultant?
Thank you for reading. Kelly. X
Hi and welcome to the online community although I'm sorry you've had to find us.
I can't help with your questions and I noticed that your post hadn't had any responses so could I suggest that you post in ask a nurse and one of the specialist cancer nurses will respond within 2 working days.
When you feel ready it would be really useful if could pop something about your dad's journey so far into your profile as it helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
Hi. Thank you for your time in replying.
Yes he’s in sleeping tablets / morphine for the paid and to help with his breathing.
A fan also seems to help in this very hot weather.
We see the respiratory consultant on Monday so let’s see what he suggests. 
Thank you again. Love Kelly
