Newly Diagnosed with Anal Cancer

Thanks Sarah so it will be nearer the end of the treatment. I’ll try walking as much as I can for exercise x 

Thanks so much for your support. 14 months post that’s awesome. What if any post treatment issues do you have? Agree with best course of treatment xxx 

Hi Sue

Wow you went Mount Vernon also that’s great to hear. 

I will take bottles of filter water. Thanks I have the £1 permit for parking now. 

How did you get on with treatment and how are you now a year on? 

Did you work throughout the treatment? What times did you do and recommend? I was thinking first thing to get it done but hubby said last thing is probably best then you only have dinner shower and bed. 

Thanks so so very much

Shetal

Hello my lovely Irene

So I’ve been trying to find this ring but can’t find it on the Boots site. 

Please can you post a link to it? It came up with wedding rings, hubby said steady on we got to get you through treatment first.

I am so glad it’s temporary pain and long term gain.

Always supported people through their treatments in their lives and now its me asking all the questions.

Thank You so so very much

Shetal

Hi Nikki

Thanks so much for the warm welcome. Wow 8 years post that’s awesome.

What are your main tips please? How is the new normal life for you?

Thank You so so very much

Shetal

Thank you for your suggestions and Well Done 14 months cancer free yippee. I’ll have to raid hubbys underwear drawer as he has baggy boxer shorts. I’ll start on the moisturising tonight. I have the water wipes now as it’s already painful when going to the bathroom. I’m hoping it’s chemo tablets mostly but told one infusion so that may be the first day so will wear layers and a T shirt. Am alrrady going through menopause so this has been my clothing for the last few years. Thank You 

Shetal

Hi Shetal,

 I managed stairs and also managed to get out for a walk every day during treatment. It did get much more uncomfortable in the last week but helped so much psychologically.

Post treatment I had very erratic bowels, My biggest issue was sudden onset lower back pain which may or may not be related. At the 11 month mark I developed severe constipation and am due to have a colonoscopy next week. 

Having said all that, the treatment was effective for my T2N1 tumour 

I Hi Shetal

think I originally asked for mornings, but when the schedule came through ( after all the planning was done) they were different times every day, usually similar for each week, and mostly mornings! Then each week they gave me a revised sheet!! I don’t work , so perhaps they moved me around because I was flexible?? 
I found early morning was best, as later sometimes they were running a bit late, and also I had a lot of problems with gas in my bowels, which could mean I had to have a second scan after passing the gas!!! And first thing after a light breakfast worked best for me!

I was ok for the first 3 weeks, managed to get most things done as normal, though felt a little nauseous, and needed a nap late afternoon by about the third week, but I had been in a lot of discomfort from the mass( gp treated for piles for about 6 months!!) and that was gone within about a week.

last two weeks were more tiring, and started to get sore, and 2 weeks after treatment were worse, slept a lot, but managed a walk most days.

im now feeling fine, almost back to normal apart from still having a to run to the loo occasionally and still having a lot of gas and mucous, but they tell me early days and it’s getting better slowly…..

last ct scan in Nov was clear, mri and ct due in March

They do tend to run out of creams, so try and stock up early!!

good luck

Sue

Thanks for your comments. Wishing you all the best on the discovery session. Good to know I’ll be able to manage the stairs to go to the bathroom. I’ll also make sure I do my daily walk. Thanks so much xxx

Thanks for the suggestion of mornings. As I’m going to be working I’ll ask for mornings so can complete a days work and less delays. That’s great you got through them. I will ask for creams also. I got to buy ones from now on to put on also prior to the start of the treatment. Well done on being clear. Wishing you all the best xxx I will update again what they say next Wednesday.