Thank you so much for the list of things to prepare! So glad for your return to work and your recovery! Did you do chemo radiation? Also if that is too personal please ignore. Thank you!
I was in the 'freak out' stage for months until treatment started, (mine took a long time to identify) and when treatment started, although it is tough, I felt a lot more in control and there was a light at the end of the tunnel. So a big welcome to the forum although I am sorry to hear about your diagnosis. However, you have come to the right place as everyone on here has either been through the treatment or are going through it right now, and we have lots of tips and coping strategies we constantly share. And we talk about everything, there are no holds barred.
At the moment, there is a lot of waiting around as all the information and scans is collected and a final treatment plan drawn up, but once that happens everything starts to move quickly.
We have all been in that place you are in right now, going through fear, denial, disbelief, and that's why so many people stay around after treatment (with the cancer long gone) to help others, the memory of those traumatic early days is very clear.
We are here to help support you through this should you need it.
Day 1 had iv chemo then straight to radiotherapy..
Then every day after that tablet form chemo 2 times a day and radiotherapy..
I found the first 4 weeks ok..I was very tired.. from week 5 it was harder as skin starts to break down..so lather yourself with the flamigel that hospital gives you and go commando as much as possible..
Thank you so much for this! At this point it sounds like I might have gn quite similar. I hope to get most done before we travel to my son’s college graduation in mid june. They did say they will plan around that as it an important event. I will take all the comfort advice for sure as commando won’t be an option for that trip lol!
hugs back to you, really to each of you here! This is an awesome community!
I don’t know it’s best to start a new discussion here,if it is please guide me.
My question this morning is what do you all recommend as far as preparing for treatment-regarding health. Any diet and exercise advice? Thinking I should e proactive while I wait.
I think everyone is diffrent re diet.. leading up to diagnosis my diet was so bland and beige..
I cut out yogurts.. salads.. butter.. mayo and red meat as too hard for me to digest
During treatment i struggled to eat most foods other than porridge..mash potatoes..white fish (cod) not batter or breadcrumbs.. banana..white toast or crumpets with diary lee.i also ate jellies babies.. but now can't stand the sight of them..
But I would say eat whatever u can and what is easiest for your bowel movements..
I drank plenty cranberry juice diluted with water or barley water and that helped with my wee's..
I would say try and get as fit and healthy as possible. Definitely start moisturising the area and round the tops of your legs. I didn't do this but probably should have and that's batch cook some food for the freezer incase you don't feel like cooking. Also maybe buy some of the things you may need during treatment which is difficult as you won't know yet what you will want and obviously you don't want to waste money. The things that were important for me during treatment were water wipes and men's baggy boxers. Quite a few people buy sitz baths although I never did. Your hospital will be able to advise which moisturisers you can use as different ones seem to ok different things. Always check with them however harmless you may think something is, I got told of for using epsom salts. Was also told to stop taking the majority of the supplements i was taking as they could affect how treatment works. Sending hugs. Xx
