I'm new here so hi

Hi Mix,

Just wanted to say well done on completing treatment and wish you well for recovery. I’m sure it’s a relief not to do the daily trek but know you will be at peak symptoms right now.

Thats great initial news about the tumour reducing and hopefully the radiotherapy will keep doing its job.

Rest up and take care.

Big hug xx

Thanks 

It's so nice that hear from people that are going through exactly the same, it definitely brings hope, it's certainly made me think it's doable as you said. 

That's fab news you got a complete response to your treatment, how often do you go back for scans and check ups now? 

Hugs right back to you x

Hi Tigger,

I will have another scan in May and next out patient appointment in June.

You will have regular Oncology appointments throughout your treatment and will be kept under review for 5 years.

Although it can be an exhausting nightmare getting to the point of diagnosis and treatment we are fortunate that this cancer has a really good response rate to treatment.

The side effects really do vary from person to person and they do tend to prepare you for the worst but it’s relatively short lived and doable. When I felt rough my lovely oncology nurse friend told me that that was positive evidence of the treatment working ! Somehow that helped and keep focused on the goal.

More hugs to you xx

That definitely sounds like a good idea to keep you going through it, I think I will take that on board ️

Hope all your future scans and appointments go well 

Just want to get started now and beat this. 

Thanks for all the advice and kind words x

Hi Tigger

Welcome to the forum. I'm 5 months post treatment on Sunday and had 28 sessions radiotherapy with chemo 5 days at beginning and 5 at the end, all my chemo was intravenous via a picc line and pump. We all react and cope with treatment and side affects differently, while it wasn't a walk in the park it wasn't as bad as I expected. Easy for me to say but it will all fly by (even though you may not think that at the time) and you will be out the otherside. Sending hugs. Xx

Hello.... I have now completed all of my treatment for Endometrios cancer stage 3 grade 1 and received 23 radiotherapy sessions and 6 rounds of strong chemotherapy.  I was also offered 2 brachytherapy sessions but I declined those.  I sailed through the radiotherapy without any problems apart from severe tiredness and fatigue.  Chemotherapy was a different story , but please remember everyone reacts differently and there are different drugs and different strengths .  Chemotherapy for me was absolutely horrendous and there was no let up!  It affected my legs and feet so badly that I could barely walk and the constipation was absolutely horrendous!!!  I’ve been left with neuropathy in my legs and feet so I’m now on Gabapentin for the pain.  My chemotherapy drugs had to be reduced by 20% after my first round but I believe that is normal for a lot of people.  For my radiotherapy sessions I was prescribed a huge bottle of Aveeno which is a body lotion for if my skin became sore but I was lucky because it didn’t.  If you do suffer from any side effects please tell the radiotherapy staff and they will help you.  I was prescribed all the medication in the world to help manage my side effects to the chemotherapy and they helped to get me through it.  All of the staff were absolutely fantastic and so lovely and caring.  They were absolutely wonderful.  The staff are there to help and support you through the treatment process so always tell them how you are feeling and please don’t suffer in silence bless you xx

Hi 

Thanks for sharing your story, that sounds horrendous what you've been through with the chemo, do they think the neuropathy in your legs and feet may clear up come time? 

Free m what I have been reading and folks telling me on here the radiotherapy team seem to help amazingly l, a m sure the team have have will be the same. Just waiting for my start date, wish it would hurry up as just want to get going now. 

X

Hi and thank you for your quick reply.  My oncologist told me if my neuropathy hasn’t gone within the next 2 months then I will always have it unfortunately.  She also told me that if my cancer does return they won’t be able to cure it but I’ve read on here that some people have had cancer more than once and they have received treatment again so I’m feeling confused...and shocked!!  I’m feeling numb and don’t know what on earth to think.  I thought I’d be jumping for joy to hear the words you are cancer free but I’m not ...it is bazaar and I certainly don’t feel like celebrating x

Omg that's not the news anyone wants to hear, so sorry to hear this, surely they will be able to do treatment again if it does come back, maybe seek another opinion. 

Try to think positive, sending love and hugs x

Hi Dramalady , firstly welcome to the MacMillan Online Community although I’m really sorry to hear of your journey & your struggles with the repercussions of your treatment.

Obviously different cancers carry different treatment options & therefore so does recurrence. With anal cancer if the treatment is unsuccessful or a recurrence occurs then there is a surgical option, it’s a huge surgery & one that has a long recovery period but it can still offer a curative outcome. I have to admit I don’t know anything about endometrial cancer but I’m presuming like with us more radiotherapy wouldn’t be an option as you can’t have a course of radiotherapy more than once to the same area. 

Have you joined the Womb (uterus) cancer forum ? If not you may gain more useful information over there as they will have a lot more information relevant to your particular diagnosis & long term treatment repercussions. 

Nicola