Apologies in advance for the long post
So, last year I was diagnosed with anal cancer (still hate telling anyone), 3 lymph nodes and a tumour on my liver-stage 4. I had 6 months of carboplatin/paclitaxel on week 1, just paclitaxel on weeks 2 and 3 and then a week off. Challenging, but I got through it. I responded well and all my tumours shrunk, my last appointment was December and I was told to enjoy Christmas.
I had a CT scan last month and saw my oncologist today to be told that there are some new spots on my liver. I now have to have 6 cycles of Cisplatin ( infusion once every 3 weeks) and Capecitabine, every day for a total of 6 cycles. So, 18 weeks in total. He’s advised that I’ll probably be rough after the infusion. I was hoping for better news but wasn’t totally surprised.
Has anyone else experienced this combination of chemo? How were the side effects please? He’s said I’ll lose my hair-again-I really find that traumatic and hate it when people say-it’s only hair-yes, I know that, but it’s my hair.
Thank you everyone
Hi Oakwood51 ,
I haven’t had the treatment you’re enquiring about but I just wanted to reply to your post & say how sorry I am that you’re having to go through this again. Life sometimes just doesn’t seem fair does it?
Although I didn’t lose my hair with the treatment I had for anal cancer I can completely understand the distress it must cause, our hair is such a big part of our physical identity so whoever says ‘it’s only hair’ needs to think before they speak!
I hope someone that has experience of this particular treatment will see your post & offer you some reassurance soon.
Nicola
