Hi everyone sorry not been on for a week or so my sense of humour left me for a couple of days. But it’s back!!! I’m 12 days post treatment and I must be turning a corner because these 4 walls of my bedroom are feeling cell like, I’ve watched soo much shite on the tv and read 2 books and exhausted every video on fb!!! I feel ready to leave this room and venture to just outside my front door ( prob breathe a bit if fresh air then come back in again) as I still have no interest in my appearance. I have also been navigating the benefits system ( OMFG) you need a degree!!! Think I’ve got there but won’t know for about 3/4 weeks yet. Oh I did finally pluck you’ll be pleased to hear. My blisters are drying out a bit now ( which is a different pain altogether) so I have come up with an ingenious idea, puppy training pads lathered in Zerooveen, stops the dry skin and stops any mess on my bedding ( as I’ve been commando for well over 3 weeks). I even had a little tipple on sat night whilst sat on my puppy pad watching BGT and ringing a bell for my top up. Looking forward to be able to look back on this and say WE DID IT!!! And we have. Good luck everyone xxxx
Hi Irene, yes I feel like I’ve turned a corner but like you say I need to take it a bit easier as I actually mopped my downstairs this morning and I’m totally goosed now!! So back to bed and see what other crap is on tv. I’m actually getting a hit of an appetite back too unfortunately, can see the weight I’ve lost just trying to come back onboard, but hey ho that’s the least of my worries. Take care Irene and thanks for replying xxx
Hi..good for you on celebrating with your vino..oh a good night's sleep sounds flippin amazing..
Re the dilators
during my treatment-Each week on a Monday I saw the oncologist after my radiotherapy.
On week 5 of my treatment I also saw a nurse who walked me through how to start using the dilators..the ones the hospital give you are plastic..so I invested in some softer silicone ones and some water based lubricant..im not going to start using these until I'm all healed through..
I think all women are offered these to help train opening up the vagina and cervix area.. did your treatment team not offer you these ?
Maybe reach out to your treatment team for a little advice or like you say wait until your 6 week check to ask..
Xx
Squeak
Hi and no I wasn’t given any advice during treatment I was informed of them at the beginning. Tbh I only saw a doctor twice during the treatment and only examined once. Yes think I will save exciting prospect for my 6 week check up lol. It’s just so glamour this anal cancer isn’t it xxx
Oh dear that's not good..
Yes save your chat fir your 6 week check up.. it will be about then when I start to use them..im not even sure I will be able to find a place to put the dilator as everything looks so swollen and bruised..
I keep thinking it will be a bit like when I was 11 and tried to use a tampon for the first time..I used to come out of that bathroom covered I sweat and admitting defeat as to not being able to insert all the way..
Oh the joys if AC
X
Squeak
Hi Maljay , I love the fact that you’ve ’turned that corner’ & especially that you’re getting your sense of humour back, oh & that you’ve resumed the plucking
The benefit system is a real head wobble isn’t it? My eldest daughter has additional needs & I've navigated the benefit system for 30 odd years on her behalf but it still boggles my brain even now! How some people swindle benefits I’ll never know, it must be easier to have a job surely!
I hope you can soon get off the puppy pads & back onto the bare bedsheets, what a treat that’ll be eh?
Sending lots of healing vibes your way,
Nicola
Ohhh thank you Nicola, it’s just so nice just to feel a little bit of the old me!!! Obvs got a way to go yet ( including bare bedsheets) ohh the thought is heaven. And thank you for the healing vibes, could you also send me some stretching ones too because the next step doesn’t sound so exciting lol xxx
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007