MRI scan to see if treatment was successful on the 10th

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Hi

I discovered   after a routine screen and following colonoscopy CT MRI and PET that the bleeding I was experiencing was not due to pile which my GP had diagnosed but to  squamous cells anal cancer stage 3. Felt shocked but I  accepted and I thought one in two will experience cancer in life so why would not be me. 

I started chemoradio therapy  in September 5 and half weeks. First week in hospital 24 hrs chemo and daily session of radio then everyday in hospital for radio and then another week inpatient as above 

I had a bad reaction  to chemo with tracking in my veins and rush but all in all I did not had many side effects. I had nausea once I  did not lose my hair. 

The last week of radio was hard as I  experienced burns that  continued and went worst in the following 3 weeks after finishing treatment. I found very helpful having sitz baths with non alcoholic calendula tincture and using  flamigel. I was however continuously exhausted and I  just followed what my body was telling me and rest when needed. I did not work as I needed to concentrate in recovery as no matter what treatment has a big impact on the body.  I felt positive all the time but now I feel anxious as on the 29th I  will have the result of the MRI scan I am going to do on the 10th. 

  • Hi Marisol,

    Just saying hello and I’m sorry that you have this diagnosis and have had such a tough time with the chemo. Sorry that you had to spend so much time as an inpatient during the treatment pathway. Sounds really challenging.

    This period between the first scan and feedback is a hard one. All the anxiety of wondering if it has worked.

    Overall the outcomes for this particular cancer seem to be quite positive but I know this doesn’t alleviate the worry. 
    It sounds like you are really listening to your body and resting when needed. Keep being kind to yourself. The exhaustion just seems to be part of the process. Sleep when you need to and allow your body to heal.

    Wishing you all the best both for the scan and for the outcome. X

  • Thank you so much 

  • Hello Marsol63

    A warm welcome to the forum and well done for getting through the treatment, although I am sorry you had such a bad reaction to the chemo.  Sadly you aren't the only one whose GHP misdiagnosed them with haemorrhoids and of course most of us trust our GP's diagnosis and some only find out it is cancer when the piles don't disappear and get worse and worse.

    The anxiety around scan time can be crippling, especially in the early days but even years down the line, going for that follow-up appointment is utterly nerve-wracking.  Please be prepared for your scan not to be completely clear - radiotherapy carries on working for some considerable time and many people don't get an all-clear until their second scan.  Not what you want to hear, I am sure, but it is best to be prewarned and not to panic.

    Will be thinking of you on 29th, please let us know how you get on.

    Big hug

    Irene xx

  • Hi Irene

    Thank you for your reply I wasn't aware the scan would be not definitive or give me all clear so I really appreciate your advice. I think I  will keep to be positive be kind to myself and fingers crossed xx 

  • Hi  ,

    Firstly congratulations on completing your treatment, it’s no walk in the park but it’s behind you now (no pun intended!).

    Secondly the scanxiety is real!! It’s awful awaiting scan  and/or test result especially in those early days! Just try & keep in the forefront of your mind that this treatment for our particular diagnosis is very effective & hopefully it will have been successful in your case too. 

    Wishing you the best of luck with your upcoming scan & results.

    Nicola

  • I will keep positive Nicola thank you so much for your reply. Xxx

  • Hi Marisol63

    Well done on getting through treatment. As others have said the first scan isn't definitive as the treatment is still working, so try not to worry (easier said than done I know). Having said that I hope you do get the all clear on that first scan. Sending hugs. Xx