Perineum/anal cancer

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I was diagnosed with vulva cancer last year, it was on my pernium and attached to my annus,  had chemoradiation for 5 weeks  and was given the news that I was in remission in July this year.

In September I realised that another leison had developed in the same area,  after petscans mri and cat scan I went to see consultant who said the only treatment is to operate and remove the tumour.

Tgere will be 3 surgeons in the theatre has I will have to gave a colostomy which I will have a stoma bag for life,  due to radiotherapy my skin us thin so a plastic surgeon will have to take skin from somewhere and attach it  

My date for the operation will be in the next few weeks,  I will be in hospital for 7-10 days then it will be months of recovery. 

My freezer is stocked up with meals for my husband and I will have to start the Christmas shopping this week 

Lots of love Susan 

  • Hello Susan

    I am really sorry to hear that the treatment didn't rid you of this and that you are now facing surgery.  Hopefully you will be out of hospital and recovering before Christmas and your husband will be on hand to look after you whilst you recover.

    I had an elective stoma in June because of ongoing problems after chemo/radiotherapy and it has actually made my life a lot easier - I no longer have to worry about being caught whilst out and I have taken having a stoma in my stride.  But I realise your surgery is a lot more complex and recovery is much longer, and I really do wish you well - please come back and let us know when you are due to have your surgery and how you are.  And you need help from all quarters going through this, call in all those favours now!

    Irene xx