It is six years since I completed my radiotherapy and chemo treatment. and unfortunately, I still suffer on a daily basis. I was badly burnt with the radiation and spent twelve days in an isolation ward. I imagine this is very rare, so would-be patients, perhaps, should not worry. I only mention this, as I would like to know if any others are suffering post treatment. My daily quality of life is poor, due to severe IBS and Lymphodema. I am keen to hear from anyone who is suffering from similar problems.
Hi there Gillian_R99,
Firstly welcome to the Macmillan online community although I’m sorry to hear you’re still experiencing difficulties 6 years post treatment. I sympathise with you on the IBS front as I too now experience issues with certain foods. I very rarely suffer diarrhoea, I do have to be careful though as I easily become constipated, I take stool softeners to counteract this, my main issues involve sometimes painful bloating & gas! There’s certain foods that I know if I eat them I’m going to have issues! My digestive problems are manageable though & as long as I steer clear of the red flag foods then I’m ok & it doesn’t affect my quality of life. I think the radiotherapy has altered my digestive system permanently but as I’ve said it’s manageable. I don’t personally suffer with lymphoedema but have a friend that had treatment some years ago for cervical cancer & she had this post treatment & it was unfortunately an ongoing issue for her. Hopefully other members will see your post & share their experiences also.
Nicola
