Struggling

FormerMember
FormerMember
  • 19 replies
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Hi I've been diagnosed with cancer but I have my husband who has Alzheimer's and I'm struggling to look after him and myself. He's shouting that I only look after myself and ignore him. I've tried to explain to him but he keeps forgetting don't know which way to turn

  • FormerMember
    FormerMember in reply to FormerMember

    Sorry dog nudged me 

    Will they have to make up and only come when I'm out of the way because of corvid being on the raise again 

  • Hi , 

    That’s great news that some help is being put in place for you & your husband. It’s such a difficult situation for you. I’m not sure how this will work regarding masks etc. In normal circumstances with you receiving chemotherapy your immunity will be wiped out & I would have said yes in the current climate then visitors would wear some PPE. But with your husbands Alzheimer’s I suppose a lot depends on how he reacts to this too. My aunt receives care at home & the girls that visit her always wear PPE & have done throughout the pandemic. Do you think this will cause an issue with your husband? Hopefully the people that they send to help you will have some experience with Alzheimer’s & this in turn will take some pressure off you as you will need to be able to rest when you  feel the need as unfortunately fatigue is a side effect of this treatment & unlike normal tiredness it’s almost impossible to fight your way through it, it’s a bit like wading through treacle! 

    Nicola

  • FormerMember
    FormerMember in reply to Nikki65

    I have been told it will be 3 weeks before anyone get in touch with me hopefully I won't need them before that thanks for all your help

  • Hi again ,

    If you get a start date for your treatment before anyone has been in touch from social services please don’t be afraid to chase them up just so it’s sure that something is in place for when you need them, I’d hate to think you’re struggling any more than you are right now, you’re going to need to take care of you throughout your treatment.

    Nicola

  • FormerMember
    FormerMember in reply to Nikki65

    Hello just had a phone call going to go for my ratio on Wednesday so maybe I'll get a start date

    Thank you for your help

  • FormerMember
    FormerMember in reply to FormerMember

    Should have read tattoo

  • That’s great news hope you get a start date, good luck. 

    Nicola 

  • FormerMember
    FormerMember

    Hello again I start my treatment on Monday is there anything I need to take with me to the hospital

    Thank you for your help

  • Hi ,

    I didn’t take anything to hospital with me other than a large bottle of water, in hindsight I would have taken some fruit or a couple of snacks as my chemo appointment was in the morning & my radiotherapy appointment was in the afternoon but there was a cafe in the hospital & they managed to fit me in for my radiotherapy early in between 2 other appointments. 

    All the very best of luck for Monday. 

    Nicola