Update well I'm in hospital with temp ?infection only they can't find where.
My important ct scan is due tmrw, this hospital say they will do it But I've no faith as I did have cubicle as high risk of infection, last night they moved me to a bay of 5!
Ive had antibiotics and fluid drips and temps down to 37.2. I just want to go home.
Drs saying my groin is large, puffy and discoloured. its still leaking lymphatic fluid.
UPDATE
I started cycle 4 last Friday. I had lymphodema in my left leg, same side a groin lymph nodes with cancer.
Monday I started to leak from what I think is the biopsy site (done before chemo started to confirm anal cancer spread) its clear fluid weeping constantly. I sent photo to oncologist who requested to see me.
Devastated news, he "thinks" it looks like an ulcer and this is the tumour coming to skin surface and breaking down.
the biopsy may of SEEDED! ANYBODY HAD THIS ?
I need to have scan for this to be confirmed. Booked for this week.
Strange though as my lymphodema has gone down and my leg is normal skinny chicken leg. The fluid is still coming out and I'm having it dressed daily and resting up.
Any body got experience of this ?
ORIGINAL POST BELOW
I posted my journey previously. Last Post was when I was awaiting APER surgery last Oct 23.
Major surgery was done with full hysterectomy and stoma (martha) fitted Oct 23.
Given all clear from history. But before the 4 months mri I could feel a lump in my groin. Emailed oncologist who requested early scans.
It's back again, now in lymph nodes in groinand incurable.
I'm receiving chemo for 6 cycles and I've completed 3 so far. To try and contain and shrink.
Considering I started out with less than stage 1 and 95% curable, had chemo radiotherapy then reoccurrence. APER then reoccurrence both within months.
Anybody else in same situation?
I'm thinking to get another opinion privately, anybody else done this ?
