That time has come and to say I’m dreading the results is an understatement.
the last 3 months following the chemo radiation started off really difficult. The pain quickly subsided and aside from feeling a bit weaker and more tired than I would have been prior to diagnosis, I’ve been fine.
i even managed a trip to london which was amazing.
the last few weeks leading upto scans I’ve been feeling anxious and with that I’ve been thinking I feel like my bum is more painful than before.
i have a stoma but I have a loop colostomy and over the past few weeks have been passing stools. Spoke to stoma team who said it’s ok and normal so hoping the tenderness is just related to that.
the other thing I’ve been getting is really achy muscles. Mainly legs and buttocks. I can’t figure out if I need to be more active (I feel I already am) or if I need to rest (which i don’t much of)
Anyway I won’t be getting the scan (ct chest and abdo. MRI pelvis) for around 4 weeks or so.
im wandering if it’s likely they will want a pet scan too. ? What’s others experience of this been. ?
i hate waiting but also don’t want to get the results due to the fear of bad results. Life the last 3 months has been ok considering what I’ve been through the past 12 months and I’m scared that will be tasking away again x
Hi Ker25 ,
I know it doesn’t help too much but the anxiety you’re feeling pre-scan or pre-check-up is completely normal, I know even at the stage I am now, almost 5 years post treatment, it still gets me!… I’m pleased you got some reassurance from your stoma team & that everything is ticking along as expected, I would also think that would explain the tenderness.… Regarding the aches in your buttocks & legs this seems pretty normal following our treatment & I’ve continued suffering stiffness in my upper thighs, groin, lower back & also suffer bilateral sciatica, I’m getting physiotherapy now & it’s helping greatly, I do a set of 5 simple exercises every other day & felt an improvement almost immediately although if I skip a couple of days I do feel it but if this it what it takes to stay more mobile & comfortable then I’ll take that.… I think PET scans here in the UK are given when there is fear of spread to other organs, although different oncologists & hospitals have slightly different protocols. as far as I’m aware surveillance scan consist of what you’ll be getting in around 4 weeks, I like many have only had pelvic MRI & chest & abdomen CT with contrast.
You’re doing great & I’m pleased to hear you’ve been feeling so well.
Nicola
