Cancer spread?

Hi LaLaJ I'm sorry about your news, I can't really help but Irene75359 had lung spots and she has written about it on her bio, you may find that helpful. Sending hugs. Xx

Ty!

Hi LaLaJ , I don’t have any personal experience with anything similar but wanted to say I’m sorry that you’re having to deal with this right now! I hope this turns out to be nothing to worry about & your treatment can get under way soon. 

Sending you a virtual hug. 

Nicola 

Hello LaLaJ 

I am really sorry to hear about this latest development, just when you were all geared up to start treatment on Monday.  My lung nodule(s) was found during the very first CT scan I had as I didn't want a colonoscopy after a bad experience.  I didn't have that investigated at all, I think they assumed from the very start that it was a secondary from the rectal tumour.

What that meant (for me) was that I had six months of systemic treatment first.  This treats all the cancer in the body, my lymph nodes, cancer in the blood stream, the primary and the lung node.  After a couple of months break I went on to have the chemo/radiotherapy, and a week after that finished, an ablation on one lung and a week after that an ablation on the other lung (they weren't sure that was cancerous but did it for good measure).  

This may well be the path for you, please note I am not a medic, but there are several other forum members who have had the same diagnosis at onset and undergone the same treatment path.  However, I am also not sure if the nodules are in your lung or chest which could mean a different course of treatment.

This must be a real worry to you and hope you get answers very quickly, the waiting for treatment to start is always the worst part after a cancer diagnosis.

If I can help in any way at all, please shout out.

Big hug

Irene xx

Thank you so much Irene ️ you have been through so much. They want me to see a pulmonologist who may do a bronchoscopy to find out what is going on. Thanks for sharing your experience and for your kindness

Hi LaLaJ 

I am sorry you are having to deal with this.  I hope your treatment starts soon.

Sending hugs xxx

Ty!!

Hello Lalaj, I was found to have lung node during PET scan for anal cancer.I was due to start treatment on wednesday next week.I was told today that node on lung looks bigger but not had radiology report yet.PET scan has been ordered and treatment on hold.Im so worried and disappointed not to be starting treatment as i’ve waited so long.It’s good to know im not alone.

Hi Sunrise!

you are definitely NOT alone. I’m so sad to hear your treatment has been put off and they found something on your lung.We make quite a pair! I am disappointed too but I am seeing pulmonologist tomorrow morning and hopefully find out what’s going on. Please let me know when you have your PET Scan and keep us up to date on diagnosis and treatment. Hang in there!!!

Hello Sunrise24 

I am sorry that you had to find yourself here on the forum but you have come to the right place.  There are quite a few of us who were found to have spread from the original tumour during scans prior to treatment starting, I was one, if you read my history.  It does change the course of treatment somewhat and the waiting until some form of treatment starts is extremely stressful.

Please keep us updated on what is going to happen next; the likelihood is that you will have systemic chemo first so there will be treatment, just not what was originally planned.  If this is the case I have experience of this and can give advice on what helped me, I tolerated this phase of treatment very well.

You really aren't alone.

Big hug

Irene xx