My cancer returned after 3 years but they are saying it is cells that have always been there that were resistant to the chemoradiation treatment I completed. It came back as a complex cyst up behind the cervix. The biopsy was positive for anal cancer. My understanding is they are taking all the female organs, 2/3rds of the vaginal canal, rectum and anus. I was hoping they would leave the anus and sphincter because the healing sounds rough but I know the goal is to get good margins. The plan is to take the gracilis muscle from the thigh and tunnel it in to pelvic cavity and make a flap. They are saying because I had radiation there is not good blood flow for healing. It all sounds so drastic but I know people have had it done before and survived. The hospital is saying I will be in hospital for 4-5 days then discharged home. I live alone and upstairs so I really don't know how that is going to work. As scary as it is I just want to get it over with at this point. It is nice to have a spot to post and to hear other peoples experience.
Thank you,
Kathleen
Hello Kathleen ( Hope4life )
I can completely understand why you want this surgery over and done with. I am hoping that first, the hospital don't discharge you before you are ready (and I am sure they won't) and second, that they provide follow-on care. Can you ask about that? Do you have any friends and family that you can call on to help until you are further along in your recovery? I hope I am not alarming you, I should stress that I have no personal experience of APR surgery and it may well be that you will be absolutely fine. But it would be good to have a decent stock of ready meals, painkillers, disposable waterproof stick-on bed squares - I used these during radiotherapy for slight leakage as I just couldn't have changed the bed in the middle of the night. I am hoping some others with more experience than me come on and give you some tips.
I will be thinking of you next week and please do let us know how everything goes.
Big hug
Irene xx
Thank you Irene for you hug and encouragement. Good tips. I just got some of those pads for the bed. And I have a good support for help after the surgery. I want to keep up hope in spite of having to wait so long for the surgery and knowing it has been growing all this time. I hope they can still get some good margins and that it hasn't spread. Six days to go. Kathleen
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