Anal Cancer

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Hi

In almost 3 weeks post treatment and i’m still in so much pain with radiation burns to all of my lady bits and my bum hole. Also have the yellow/green discharge. I’m having twice daily baths with bicarbonate soda in it (recommended by nurse) then applying Morphine Gel but by god that stings for a few mins. Is this ever going to heal up! i feel like i’m getting quite tearful about it all. I’m on slow release Morphine tablets twice daily and can quite easily sleep all day and all night. This is getting to me too so try and be up for about 6 hours at some point during the day. Any advice is very welcome at this stage. Is anyone at the same timeline with the same or different symptoms? TIA. 

  • Hello Kazaboo,

    Oh, you are right at the sharp end of this now. I can only offer you some thoughts that you should soon be over the worst bits, and things will start to settle as your body's healing catches up.

    I am several years post treatment now, but there are several on this forum who will be much closer to you time-wise and they may be able to give you some better guidance. I just wanted to give you some glimpse of the light which should be appearing at the end of this tunnel soon.

    It sounds like you have been given lots of advice and supplies to help get you through, so I can only say hang in there; perhaps you could start thinking about some plans for what you will do when you get past this stage - it should not be long now, and by the time summer is here properly you should be feeling much more on top of things.

    xx

  • Hello lovely, I'm on my 16th day today. Starting with pain,itching . I bought a sit bath , it just sits on the loo and has a hand pump , so soothing

     Every time I put cream on it stings, I'm doing a dance round the kitchen,and deep breathing. I'm a few weeks behind you,  so can't offer any advice, but your not on your own, and soon this will be over . Sending healing thoughts Anne

  • Hi Kazaboo,

    I'm so sorry you're experiencing such discomfort! I am 9 weeks post-treatment and remember being in the stage you're in. I too felt terrible at week 3 and was really discouraged because somehow in my head I thought there would be this miraculous turning point at week 2, and I would suddenly start to feel better, but I wasn't experiencing that at all. More than once, I dissolved in tears.

    The good news is that you will feel better. For me, the turning point was somewhere between week 3 and 4, and although it wasn't sudden roses and unicorns, just feeling a little more energy and less pain buoyed my spirits a lot. Getting to the point where I could tolerate wearing underwear felt like a major achievement.

    I can't really comment about the discharge because I didn't experience it, but I've read that a lot of people experience it. Maybe check in with your treatment team just to be certain?

    Most of all, I just want to say hang in there. It really does get better, and it feels like a miracle when it finally happens. Xx

  • thanks for your positive words xx

  • Mrs V. 

    Thanks for your encouragement. I’m feeling more positive about my journey now. xx

  • pThank you so much. Hearing positive words from someone who is only 6 weeks ahead of me is massively encouraging. xx