fifth week - pain management

That’s the biggest surprise ever - food choice made a huge difference for me.  Bread plain pasta for weeks enabled me to function and any veg eaten caused huge pain.  The skin rawness is awful so take the pain relief but keep the laxatives going or you could be in a worse position xxx  

This time will pass but doesn’t seem very fast for what seems a long time xxx 

I set hourly alarms when the most frequent pain relief taken and longer as things improved. 

My friend is 5 years clear after the same diagnosis as many of us and a true inspiration xx 

Hi Mirkle I sometimes wish these doctors and nurses would get their acts together when giving advice. I can understand we are all different but I found so much conflicting advice about diet and its effects on regulating bowel movement. My hospital oncologist referred me to a dietitian and they put me on the FODMAP diet. I went from six/ seven times a day giving me an extremely raw anus to two times a day. Why on earth they should say diet doesn’t affect your gut to me is baffling. My daughter has ulcerative colonitis and her doctor said diet doesn’t matter but the specialist said wow why would they say that! Diet matters. Our doctors and GPs have very little training on diet and anything out of their remit, even skin issues. Follow your nose and do what you think is best or better still if anyone has bowel issues then ask to be referred to a dietitian who will tell you different. Hope this helps.

Julie