Very quiet in here…

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Hello

how is everyone? I come on this page daily as it’s good for me to know I am not alone. It’s been quiet recently, i Hope all is doing ok? 

I have my results appointment on Monday, I’ve had my post treatment scans so I am waiting to see what’s happening.

 The anxiety of it is killing me, I feel like I’ve gone back to the beginning when I knew nothing. 
I feel like my life is on hold until I know what’s happening. I am 8 weeks post treatment now and hoping for the best. I am still a bit sore on my bottom and when I go to the toilet but it’s bareable. 

Aslu x

  • Hi Ya - thinking of you and positive smiles coming your way!  Positive attitude takes us a long way but that unknowing is so anxiety inducing - my friend is 5 years clear of Anal cancer - I saw her last week ad she’s not listening to any negative thoughts a- she said we have evicted the squatter!!   My consultant meet is 15/11 and no date for scan yet x 

    xxx Angie x 

  • Hi!

    yes- the waiting is the worst. I wonder if it gets any better as time goes on. I’m just about to start chemoradiotherapy. I do feel apprehensive but just want it to get started and get over with it. This forum is great at providing support and practical tips. I hope all goes well and you have good outcomes.

    ps your friend sounds great- just the sort of positive friend who understands how it feels.

  • Hello AsLu24

    It is utterly nerve-wracking, and I should point out to you that eight weeks after the end treatment is early to have scans - the radiotherapy can carry on working for months after treatment ends and sometimes the first scan (normally at three months) still shows activity that ultimately has completely gone by six or nine months.  I say that not to burst your bubble but to reassure you, I know that waiting for scans and scan results can be all-consuming.

    But that said, I am hoping that you will be clear and can get on with the business of getting on with life.

    Everything is crossed!

    Irene xx

  • Good luck - it seems everyone ha a very different reaction and journey - lean on your support team, take the meds and ask questions on here x everyone will support you xx 

    Angie x

  • Yes, it's awful waiting for results. It sounds as though everything is going ok for you so far, so hopefully you'll get positive news. I am three years post treatment and still get a little anxious before appointments, although it has got easier as time has gone on. I found it reassuring when oncologist told me I didn't need any more scans, but I still see him a several times a year for that lovely 'examination'.

    Let us know how you get on. Good luck.