Hello.
My mother was diagnosed with AML just over four weeks ago; it was then confirmed that she has TP53 - making it harder to treat. She hasn't started any treatment yet as she may be joining a study that is trialling a new drug.
We are all worried that the Drs don't seem too concerned about her starting her on treatment quickly; they say that she is stable and that it doesn't make any difference whether you treat AML early or later. We can't see why this would be? She looks really well - and is carrying on with her daily activities as she usually does.
It would be great to hear from anyone with or living with someone with AML and TP53.
