Hi Hayley, thanks it's good to hear from others who've been on this drug. Rollercoaster is so true , that's fantastic news about your son , hope you and your family are doing well xx
Hope your doing well to. Our sons consultant said the Blinatinub will be the future for treating blood cancers (or as I prefer to call it lemons)..don't ask me why but when he was diagnosed I just couldn't use the word!!....it was something that affected others but I guess we are the others now. Here anytime you want to chat xx
Today (13-10-20) I’m on day 15 and due a higher dose later when my bag finishes. All is going well. You mentioned having the infusion at home yet my doctors at QE Birmingham have strongly suggested I stay as an inpatient due to COVID-19 for the complete duration. I wonder why that is
I had the first 15 days of the infusion in hospital, the higher dose was given on day 7 and I had a slight temperature the next day. Other than that I felt just a little tired. I went 3 times a week to chemo day and am now off the bag after 28 days done, will have bone biopsy tomorrow to see if it's worked. I think different hospitals will have different ways of doing things...I am under new transplant unit in St James's hospital in Dublin so not nhs. Hope you're doing well
, hope you and your family are doing well xx
